Show your support on Rare Disease Day on 28 February
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…Read more
News
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A Week In The Life: Jessica
As part of a series featuring staff at the Haemophilia Society, Jessica Bomford, our Public…Read more
Thank you for supporting our winter appeal!
We’re excited to tell you that our winter fundraising appeal has raised an incredible £47,000. …Read more
Christina’s Story
“Nobody in my family knew anything about bleeding disorders, when I was born,” says Christina,…Read more
Gene Therapy for Haemophilia B to be licensed next year
A gene therapy for haemophilia B has moved a step closer to being licensed for…Read more
Living with von Willebrand disorder, part 6
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Living with von Willebrand disorder, part 5
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Remembering Nigel Pegram
We were very sorry to hear of the recent death of Nigel Pegram, a long…Read more
CRG PPV application process now open
Would you like to take on a role which can really influence what care should…Read more
Living with von Willebrand disorder, part 4
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Living with von Willebrand disorder, part 3
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Living with von Willebrand disorder, part 2
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more