Our president is Baroness Molly Meacher, a crossbench peer who has been active in the House of Lords, particularly on issues of mental health and drug reform, and whose expertise in health and social care and involvement with the NHS helps to raise the issues and concerns of Haemophilia Society members with other parliamentarians. The late Lord Morris of Manchester was president of The Haemophilia Society until he passed away, aged 84, in August 2012.
Kate KhairHonorary Vice-President
Director of Research at Haemnet.
Since becoming a state registered nurse in 1981, Dr Khair has gained a number of other professional qualifications including state registration in paediatric nursing, a master’s degree in anthropology, a City and Guilds master’s degree in higher levels of practice, several modules in advanced nursing and a PhD in health and social care. Kate is an advocate of the nurse’s role in the multi-disciplinary team, is the past chair of the nurses committee of the WFH, a founding Trustee of Haemnet and the Editor-in-Chief of the Journal of Haemophilia Practice.
Dr Khair worked in the haemophilia centre at Great Ormond Street Hospital for Children from 1991 as a consultant nurse. In 2018 she moved to the Centre for Outcomes Research and Experience in Children’s Health Illness and Disability (ORCHID) as a clinical academic to use her academic time to continue her work into outcomes research in haemophilia and bleeding disorders as well as to support PhD students in health research.
At Haemnet, Kate continues to support ongoing research in the bleeding disorders field, including working with the Haemophilia Society and supporting PhD students who are researching new treatments and pain experiences in people with haemophilia.
Clive joined the Board in 2015 as a trustee and took over as Chair in November 2018. The youngest of three brothers, all with severe haemophilia A, Clive is passionate about raising awareness within the bleeding disorder community of what is possible, saying, ‘I don’t believe haemophilia should limit what people do’.
Clive brings legal expertise to the Board as a qualified barrister who has practiced criminal law for 11 years. In 2015 Clive left full-time practice and now works part-time, teaching and training solicitors and barristers, allowing him time to volunteer as a trustee.
Along with being chair of the Board, Clive also Chairs the Society’s sub-committee on the Infected Blood Inquiry. Clive has been heavily involved with the Society’s work on the inquiry, meeting with the Chair Sir Brian Langstaff on several occasions, attending hearings in London, Leeds and Edinburgh and working, often daily, alongside our own Inquiry lead and legal team.
In 2020, Clive was elected to the Board of Directors of the World Federation of Hemophilia and chairs the WFH Youth Committee. In 2021, Clive was appointed to the UK Rare Diseases Framework Board as a patient representative.
Despite arthritis in his ankle, Clive keeps very active, having run the Brighton Marathon in aid of Great Ormond Street, competed in triathlons, and completed four Ironman triathlons.
Clive is a passionate patient advocate and has used his sport as a platform to speak about what he believes is achievable for people with haemophilia. He has spoken at both the World Federation of Haemophilia Conference and the European Haemophilia Consortium Conference about haemophilia and sport. Clive was formerly the Youth Ambassador to the European Haemophilia Consortium from 2018-2020.