Show your support on Rare Disease Day 2021
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…Read more
News
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Supporter takes on 300,000 step challenge for The Haemophilia Society
I’m taking on the challenge to walk 300,000 steps in March to raise money for…Read more
Fitusiran update following EAHAD 2021 Congress
During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…Read more
EHC publishes update on the nasal desmopressin spray recall
In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…Read more
Take part in survey about your experiences of the COVID-19 vaccine
The haemophilia team at Bristol have designed a short questionnaire (with input from some local…Read more
New guidelines for diagnosis and management of von Willebrand Disease published
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…Read more
Jamie’s Global Racetrack Walk
Jamie, who has severe haemophilia B, is walking almost 95 miles, an equivalent of a…Read more
Sign up to our 36 challenge today!
More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder,…Read more
Talented mum raises funds for The Haemophilia Society
My second-born son Bobby was born in May 2019, after a short stay in hospital…Read more
Your questions about the COVID-19 vaccine and bleeding disorders
Following the official Government guidance giving the COVID-19 vaccine and to people with bleeding disorders…Read more
Understanding the preferences of people with haemophilia for gene therapy
You are invited to take part in a study which aims to explore the preferences…Read more
Change to presentation shown at our Annual Member Conference
We recently received a query with regard to some of the information presented at our…Read more