Get involved

Donate time, money, advice, support – every little thing helps give hope to people with a bleeding disorder.

Make a difference

Share stories and advice, campaign for change. We're in this together.

Become part of the family

We're united through blood, and we're there for each other no matter what.

Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.

Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.

Through our community, we find the freedom, opportunity and fun in life after diagnosis.

Find out what we do

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

02 Nov 22

The Beginning – Living with von Willebrand Disorder Part 1

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28 Oct 22

Clive Smith: I went to Conservative Party Conference to raise the issues facing our members

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15 Sep 22

Office closure on Monday, 19 September

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08 Sep 22

The passing of Her Majesty The Queen Elizabeth

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Read more news articles

Upcoming & recent events at the Haemophilia Society

Members Only
Virtual
  • 19 Nov 22 at 10:00am to 11:15am

AGM 2022

This year’s Annual General Meeting for 2022 will be held at 10.00 – 11.15am on Saturday 19 November…
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  • 07 Dec 22 at 7:00pm

Christmas Carol Service

Join us for an evening of traditional carols, choral singing and guest readers for our…
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Members Only
Save the Date
  • 28 Jan 23 at 9:30am to 5:00pm

VWD Day

VWD Day takes place in Southampton on Saturday, 28 January 2023. For the first time,…
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Members Only
Save the Date
  • 25 Feb 23 at 9:30am to 5:00pm

Rare & Unclassified Bleeding Disorders Day

People affected by rare or unclassified bleeding disorders can feel some of the most isolated…
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Members Only
Save the Date
  • 04 Mar 23 at 9:30am to 5:00pm

Talking Red Live

Thousands of women struggle with common symptoms – such as heavy periods and frequent bruising…
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Members Only
  • 25 Mar 23 at 9:30am to 5:00pm

Haemophilia Live

Come along to our inaugural event devoted entirely to haemophilia. You will hear the latest…
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Members Only
  • 21 Apr 23 - 23 Apr 23

Newly Diagnosed Families Weekend – Bolton

Our Newly Diagnosed Families weekends (NDW) are free events that support parents whose child has been diagnosed…
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Save the Date
  • 23 Apr 23

London Marathon

All Marathon places for 2023 have now been filled – thank you so much to…
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Members Only
Save the Date
  • 16 Jun 23 - 18 Jun 23 at 2:00pm to 2:00pm

HaemFest 2023

Join us for a memorable camping weekend packed with activities, entertainment and workshops for all…
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Members Only
Save the Date
  • 26 Jul 23 - 30 Jul 23 at 2:00pm

Youth Camp: 26-30 July 2023

If you have a bleeding disorder or are a sibling of someone who does, then…
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Members Only
  • 22 Sep 23 - 24 Sep 23

Newly Diagnosed Families Weekend

Our Newly Diagnosed Families weekends (NDW) are free events that support parents whose child has been diagnosed…
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See all events

Members Stories

Henry’s Story

Carreen, from Surrey, got in touch with THS to let us know that activities from…
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Craig’s Story

Craig Wheeler, 31, is the current Mayor of Thrapston, near Kettering. We are delighted that…
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Josh’s Story

Hi, I’m Josh. I live in Newcastle in the North of England and I have…
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Richard’s Story

Throughout his life, he has occasionally felt isolated due to his condition. “For me this…
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Read all members stories

Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Facebook, Twitter, Instagram and e-mail. But if you’re more of a people person, we’re still on the end of a phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & B | Von Willebrand Disease

Browse bleeding disorder information

Thank you to our sponsors

We are thankful to the companies below who have supported the update of our website in 2021:

Novo Nordisk has provided sponsorship to The Haemophilia Society to support with the costs of updating this website. Novo Nordisk has had no control or influence over the information/content included on this website unless where stated.

The update of this website was supported by a restricted grant from Chugai Pharma UK Ltd and Roche Products Limited. Chugai Pharma UK Ltd and Roche Products Limited has had no control or influence over the information/content included on this website unless where stated.