Get involved

Donate time, money, advice, support – every little thing helps give hope to people with a bleeding disorder.

Make a difference

Share stories and advice, campaign for change. We're in this together.

Become part of the family

We're united through blood, and we're there for each other no matter what.

Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.

Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.

Through our community, we find the freedom, opportunity and fun in life after diagnosis.

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

10 May 22

Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies

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05 May 22

Thank you for your support of Ukraine!

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05 May 22

Government needs to publish study on Compensation Framework for people affected by contaminated blood products

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29 Mar 22

Advances in inhibitor knowledge and treatment

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Upcoming & recent events at the Haemophilia Society

  • 24 Jun 22 - 26 Jun 22 at 4:00pm to 2:00pm

HaemFest 2022

Join us for a special camping weekend packed with activities, entertainment and workshops for all…
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  • 27 Jul 22 - 31 Jul 22

Youth Camp – 2022 – SOLD OUT

If you have a bleeding disorder or you are a sibling of someone who does,…
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  • 29 Oct 22 at 2:30pm

Service of Remembrance and Thanksgiving

For all those people with inherited bleeding disorders who have died due to their treatment…
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  • 04 Mar 23

Talking Red Live

Thousands of women struggle with common symptoms – such as heavy periods and frequent bruising…
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Members Stories

Carly and Nick Warren

Wonderful Warrens Carly and Nick Warren talk about their youngest daughter Ella and their journey…
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Melanie’s story

Melanie contracted hepatitis C as a result of treatment for von Willebrand disorder (VWD), but…
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Glanzmann’s: A Parent’s Journey

Written by Annette Kellow, mum to Felix, 3 When my son Felix was born he…
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Marjorie

Marjorie’s heavy periods had a huge impact on her education and career, but it took…
Read more

Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Facebook, Twitter, Instagram and e-mail. But if you’re more of a people person, we’re still on the end of a phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & BVon Willebrand Disease

Browse bleeding disorder information

Thank you to our sponsors

We are thankful to the companies below who have supported the update of our website in 2021:

Novo Nordisk has provided sponsorship to The Haemophilia Society to support with the costs of updating this website. Novo Nordisk has had no control or influence over the information/content included on this website unless where stated.

The update of this website was supported by a restricted grant from Chugai Pharma UK Ltd and Roche Products Limited. Chugai Pharma UK Ltd and Roche Products Limited has had no control or influence over the information/content included on this website unless where stated.