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The Haemophilia Society is the only UK wide charity for everyone affected by bleeding disorders. We help people with bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.

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What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types

Diagnosis & treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and benefits available

Day to day living

Our News

LATEST NEWS AT THE HAEMOPHILIA SOCIETY

Roche/Chugai statement regarding particles in...

8 October 2019 BY

During a routine examination of drug product batches, as part of our quality ass...

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Supporter, Joshua Taylor-Rose gives insight i...

24 September 2019 BY

Josh recently took on the amazing challenge of a 6-day Inca trail trek and made ...

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Call for feedback from patients with von Will...

5 September 2019 BY

NHS England is considering evidence which could lead to the commissioning of a n...

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The Haemophilia Society welcomes NHSE announc...

21 August 2019 BY

The Haemophilia Society welcomes NHS England’s announcement today that they wi...

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Upcoming & Recent Events at the Haemophilia Society

UPCOMING EVENT
18 October 2019 at 10:30 am 134 Corstorphine Rd Edinburgh, EH12 6TS

Family Day at Edinburgh Zoo

Edinburgh Zoo is an unforgettable day out for all ages with over 1,000 rare and endangered animals. Formerly the Scottish National Zoological Park, Edinburgh Zoo is set in 82-acres within

26 October 2019 London, EC2M 3TL

Service of Thanksgiving and Remembrance

29 October 2019 Cardiff

Family day at Techniquest, Cardiff

Your Stories

Read Real-Life Stories From Our Members

Should people with haemophilia do dangerous sports? In my view, yes, if you can. You take all the safety precautions on offer, you assess the risks and plan for them, and then you go and just do it!

Alan

Rally driving enthusiast

I had done it; my race was now over. I had mixed emotions on arrival at Airlie Beach. I knew I was going to miss my crew; they really are a great bunch and you really do bond with people!

Ben

Clipper round-the-world Racer

I never thought in my wildest dreams that I could fly a plane, but my confidence has grown and I no longer doubt myself.

Paul

Flying scholar

Community

Become a member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

TAKE ACTION

CAMPAIGN WITH US

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Join the cause

Fundraise

Challenge yourself

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

CONNECT

GET IN TOUCH WITH US

We can be found on all the usual online channels – Twitter, Facebook, e-mail. But if that’s all a bit too high-tech, we’re also on the end of the phone.

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About bleeding disorders

Understanding Haemophilia & Other Bleeding Disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A | Haemophilia B | von Willebrands

Browse bleeding disorder information