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The Haemophilia Society is the only UK-wide charity for all those affected by a genetic bleeding disorder.

We help people with genetic bleeding disorders to lead fulfilling lives, make informed choices
and to support and inspire others.

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What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day to day living

Our News


Update from Board of Trustees Chair, Clive Sm...

5 June 2020 BY

5 June 2020 – Here is an update from our Chair, Clive Smith. This week Clive t...


Peer Review report on centres published today...

29 May 2020 BY

Today sees the publication of the Overview Report of the Inherited and Acquired ...


Update from Board of Trustees Chair, Clive Sm...

29 May 2020 BY

29 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive t...


Update from Board of Trustees Chair, Clive Sm...

22 May 2020 BY

22 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive t...


Upcoming & Recent Events at the Haemophilia Society

13 September 2020 at 11:30 am South Shields Tyne & Wear

Great North Run

The Great North Run is the largest half marathon in the world.

26 September 2020 London, W2 2UH

Serpentine Swim

26 October 2020 Broxbourne, EN10 7QA

Family day at Paradise Park – Hertfordshire

26 October 2020 Bristol, BS1 5TT

Family day at Bristol Aquarium

27 October 2020 Conwy LL28 5UY

Family day at Welsh Mountain Zoo

My name is Ethan and I am 19 years old. I was born with severe Haemophilia a, but I haven’t let that stop me in life. In my spare time I love to go out road cycling and keeping fit, in the past I have competed at national levels through hard work and determination.


Archie’s a great role model for others as he’s never let haemophilia stop him. People are always amazed to find out about his haemophilia because he’s so sporty and active.


I have learnt that you can’t really let a bleeding disorder stop you from doing what you want to do, and if not, there is always a way around things. I have recently been nominated as the Youth Ambassador for the Yorkshire Bleeding Disorders Group and hope to connect with other young people through that.


Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

We can be found on all the usual online channels – Twitter, Facebook, e-mail. But if that’s all a bit too high-tech, we’re also on the end of the phone.

Get connected

About bleeding disorders

Understanding Haemophilia & Other Bleeding Disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A | Haemophilia B | von Willebrands

Browse bleeding disorder information