Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.
Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.
Through our community, we find the freedom, opportunity and fun in life after diagnosis.
What do you need help with today?
My child is newly diagnosed
Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.
Someone I know has a bleeding disorder
There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.
Diagnosis & Treatment
I need help & support
All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.
Latest news at the Haemophilia Society
30 Nov 23
Welcome to our new trustees
28 Nov 23
Stronger Together Winter Appeal
23 Nov 23
Say hello to superhero Chris Clotter!
10 Nov 23
Village party raises awareness about rare bleeding disorder
Upcoming & recent events at the Haemophilia Society
Save the Date
02 Mar 24 at 9:30am to 5:00pm
Talking Red Live
Thousands of women struggle with common symptoms, such as heavy periods and frequent bruising –… Read more
Join us for the brand new ROAD CLOSED Wolverhampton 10k. Are you ready for the… Read more
London Landmarks Half Marathon – Waiting List
London Landmarks Half Marathon – Join the Waiting List for 2024! Are you ready for… Read more
Fundraising pledge required: £2000 The London Marathon is one of the greatest running events in the… Read more
Leeds Half Marathon and Leeds Marathon
Are you ready to lace up your running shoes and embrace the thrill of conquering… Read more
Save the Date
Newly Diagnosed Families Weekend 2024
Our newly diagnosed families weekend is a special event designed for families who have received… Read more
Hackney Half Marathon
Are you ready to lace up your running shoes and take on a challenge? The… Read more
Edinburgh Marathon Festival Weekend
Date: Saturday 25 May – Sunday 26 May 2024 Join the excitement of the Edinburgh… Read more
2024 Ford RideLondon-Essex 100
Fundraising pledge: £500 Get ready to experience the iconic Ford RideLondon-Essex 100, one of the most… Read more
Are you ready to lace up your running shoes and hit the streets of Leeds?… Read more
Parallel Windsor 2024
Minimum Fundraising pledge of £250 Be a part of the world’s first all-inclusive mass participation… Read more
ASICS London 10K
Get ready to run the ASICS London 10K on Sunday 14 July 2024! Join the… Read more
Save the Date
24 Jul 24 - 28 Jul 24 at 2:00pm to 1:30pm
Youth Camp 2024
Calling all children with a bleeding disorder and/or their siblings aged between 9 and 15… Read more
Great North Run 2024
Minimum Fundraising pledge of £500 The AJ Bell Great North Run is the world’s biggest… Read more