Get involved

Donate time, money, advice, support – every little thing helps give hope to people with a bleeding disorder.

Make a difference

Share stories and advice, campaign for change. We're in this together.

Become part of the family

We're united through blood, and we're there for each other no matter what.

Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.

Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.

Through our community, we find the freedom, opportunity and fun in life after diagnosis.

Find out what we do

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

30 Nov 23

Welcome to our new trustees

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28 Nov 23

Stronger Together Winter Appeal

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23 Nov 23

Say hello to superhero Chris Clotter!

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10 Nov 23

Village party raises awareness about rare bleeding disorder

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Read more news articles

Upcoming & recent events at the Haemophilia Society

Members Only
Save the Date
  • 02 Mar 24 at 9:30am to 5:00pm

Talking Red Live

Thousands of women struggle with common symptoms, such as heavy periods and frequent bruising –…
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Save the Date
  • 24 Mar 24

Wolverhampton 10K

Join us for the brand new ROAD CLOSED Wolverhampton 10k. Are you ready for the…
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Save the Date
  • 07 Apr 24

London Landmarks Half Marathon – Waiting List

London Landmarks Half Marathon – Join the Waiting List for 2024! Are you ready for…
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  • 21 Apr 24

London Marathon

Fundraising pledge required: £2000 The London Marathon is one of the greatest running events in the…
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Save the Date
  • 12 May 24 at 8:00am

Leeds Half Marathon and Leeds Marathon

Are you ready to lace up your running shoes and embrace the thrill of conquering…
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Members Only
Save the Date
  • 17 May 24 - 19 May 24

Newly Diagnosed Families Weekend 2024

Our newly diagnosed families weekend is a special event designed for families who have received…
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Save the Date
  • 19 May 24

Hackney Half Marathon

Are you ready to lace up your running shoes and take on a challenge? The…
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Save the Date
  • 25 May 24

Edinburgh Marathon Festival Weekend

Date: Saturday 25 May – Sunday 26 May 2024 Join the excitement of the Edinburgh…
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  • 26 May 24

2024 Ford RideLondon-Essex 100

Fundraising pledge: £500 Get ready to experience the iconic Ford RideLondon-Essex 100, one of the most…
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Save the Date
  • 23 Jun 24

Leeds 10K

Are you ready to lace up your running shoes and hit the streets of Leeds?…
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  • 07 Jul 24

Parallel Windsor 2024

Minimum Fundraising pledge of £250 Be a part of the world’s first all-inclusive mass participation…
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Save the Date
  • 14 Jul 24 at 9:00am

ASICS London 10K

Get ready to run the ASICS London 10K on Sunday 14 July 2024! Join the…
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Members Only
Save the Date
  • 24 Jul 24 - 28 Jul 24 at 2:00pm to 1:30pm

Youth Camp 2024

Calling all children with a bleeding disorder and/or their siblings aged between 9 and 15…
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Save the Date
  • 08 Sep 24

Great North Run 2024

Minimum Fundraising pledge of £500 The AJ Bell Great North Run is the world’s biggest…
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See all events

Members Stories

Joey’s triple fund-raising inspirations

Three very special people with bleeding disorders inspired Joey Beavis’ insane fundraising challenge of walking…
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Letter to the Prime Minister June 2023

Dear Prime Minister,  We are writing to you as the charities that work with, support…
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Henry’s Story

Carreen, from Surrey, got in touch with THS to let us know that activities from…
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Craig’s Story

Craig Wheeler, 31, is the current Mayor of Thrapston, near Kettering. We are delighted that…
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Read all members stories

Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Facebook, Twitter, Instagram and e-mail. But if you’re more of a people person, we’re still on the end of a phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & B | Von Willebrand Disease

Browse bleeding disorder information

Thank you to our sponsors

We are thankful to the companies below who have supported the update of our website in 2021:

Novo Nordisk has provided sponsorship to The Haemophilia Society to support with the costs of updating this website. Novo Nordisk has had no control or influence over the information/content included on this website unless where stated.

The update of this website was supported by a restricted grant from Chugai Pharma UK Ltd and Roche Products Limited. Chugai Pharma UK Ltd and Roche Products Limited has had no control or influence over the information/content included on this website unless where stated.