Get involved

Donate time, money, advice, support – every little thing helps give hope to people with a bleeding disorder.

Make a difference

Share stories and advice, campaign for change. We're in this together.

Become part of the family

We're united through blood, and we're there for each other no matter what.

Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.

Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.

Through our community, we find the freedom, opportunity and fun in life after diagnosis.

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

27 Jun 24

Transformational gene therapy approved for haemophilia B

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25 Jun 24

Mother-daughter cycle raises over £2k in memory of grandad

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20 Jun 24

Conan McIlwrath to be new Chair of the Haemophilia Society

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13 Jun 24

New VWD Ambassador and expanded working group

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Upcoming & recent events at the Haemophilia Society

  • 14 Jul 24 at 9:00am

ASICS London 10K

Registration Deadline: 14 June 2024. This iconic event is back, bigger and better than ever….
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  • 21 Jul 24

Run Aintree, 5K & 10K

Registration Deadline: 10 July 2024. We are excited to be going to the world-famous Aintree…
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  • 28 Jul 24

Hillsborough Castle & Gardens Running Festival, 5K & 10K

Registration Deadline: 18 July 2024 Take part in this amazing run that starts and finishes…
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  • 24 Aug 24

London Summer Walk

Get active & explore some of the Capital’s historic areas with a tour of the…
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  • 01 Sep 24

Run Thorpe Park, 5K & 10K

Registration Deadline: 29 July 2024. Run 5k or 10k around the rides and rollercoasters inside the…
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  • 14 Sep 24

Swim Serpentine 2024

Registration fee: Minimum Sponsorship: Calling all open-water enthusiasts! The Haemophilia Society (THS) is excited to…
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  • 14 Sep 24

Thames Bridges Trek

Join 2000 trekkers as we venture 25km across the Capital taking in unrivalled views of…
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  • 26 Oct 24 at 2:30pm

Service of Remembrance and Thanksgiving

For all those people with inherited bleeding disorders who have died due to their treatment…
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  • 26 Oct 24

Halloween Walk

Why not treat yourself to a hair-raising hike around some of the City’s scary streets…
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  • 16 Nov 24 - 17 Nov 24

Alton Towers Kids race plus 5k, 10k & Half Marathon

Registration Deadline: 6 November 2024 You can run, jog, or walk. This route is suitable…
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  • 16 Nov 24 at 9:00am

The Big Get-Together 2024

Registration now open! Join us for our Big Get-Together – our conference for everyone with…
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  • 01 Dec 24 - 31 Dec 24

Dive into the festive spirit with a Christmas Skydive

Minimum sponsorship of £395 for a tandem skydive Why not combine the thrill of skydiving…
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  • 04 Dec 24 - 05 Dec 24 at 7:00pm

Santa in the City – London

Registration Deadline: 26 November 2024 You can run, jog, or walk. This route is suitable…
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  • 04 Apr 25 - 06 Apr 25

Newly Diagnosed Families Weekend 2025

Our Newly Diagnosed Families Weekend is a special event exclusively designed for families who have…
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  • 06 Apr 25

London Landmarks Half Marathon 2025

Registration fee £35 (excluding booking fee) Minimum sponsorship £500 Registration deadline 11 October 2024 Feeling…
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  • 27 Apr 25

London Marathon 2025

Marathon Day next year is Sunday 27 April 2025. The London Marathon is one of…
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  • 25 May 25

2025 Ford RideLondon-Essex

Get ready to experience the iconic Ford RideLondon-Essex 100, one of the most incredible closed-road…
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  • 28 Jul 25 - 01 Aug 25

Youth Camp 2025

Calling all children with a bleeding disorder and/or their siblings aged between 9 and 15…
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Members Stories

Elliott’s Story

‘I had gene therapy five years ago – and haven’t had a bleed since’  Thanks…
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Joey’s triple fund-raising inspirations

Three very special people with bleeding disorders inspired Joey Beavis’ insane fundraising challenge of walking…
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Letter to the Prime Minister June 2023

Dear Prime Minister,  We are writing to you as the charities that work with, support…
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Henry’s Story

Carreen, from Surrey, got in touch with THS to let us know that activities from…
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Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Facebook, Twitter, Instagram and e-mail. But if you’re more of a people person, we’re still on the end of a phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & BVon Willebrand Disease

Browse bleeding disorder information