Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.
Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.
Through our community, we find the freedom, opportunity and fun in life after diagnosis.
What do you need help with today?
My child is newly diagnosed
Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.
Newly Diagnosed
Someone I know has a bleeding disorder
There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.
Diagnosis & Treatment
I need help & support
All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.
Day-to-day Living
Latest news at the Haemophilia Society
21 May 22
European Conference Discusses Better Support For Women
Read more
10 May 22
Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies
Read more
05 May 22
Thank you for your support of Ukraine!
Read more
05 May 22
Government needs to publish study on Compensation Framework for people affected by contaminated blood products
Read more
Upcoming & recent events at the Haemophilia Society
-
13 Jul 22 - 13 Jul 22 at 6:30pm
Compensation: Where are we now?
Join us on Wednesday, 13 July at 6.30pm to discuss the issue of compensation for…
Read more
Youth Camp – 2022 – Limited spaces available
If you have a bleeding disorder or you are a sibling of someone who does,…
Read more
Big Red Bridge Walk London
Big Red Bridge Walk London – 17 September 2022 12pm to 4pm Join us as we walk along the River Thames…
Read more
Big Red Bridge Walk Glasgow
Big Red Bridge Walk Glasgow – 24 September 2022 12pm to 4pm Come with us as…
Read more
Big Red Bridge Walk Derry
Big Red Bridge Walk Derry – 1 October 2022 12pm to 4pm Join us for our first-ever Big Red Bridge…
Read more
Service of Remembrance and Thanksgiving
For all those people with inherited bleeding disorders who have died due to their treatment…
Read more
Members Only
Save the Date
Talking Red Live
Thousands of women struggle with common symptoms – such as heavy periods and frequent bruising…
Read more