Get involved

Donate time, money, advice, support – every little thing helps give hope to people with a bleeding disorder.

Make a difference

Share stories and advice, campaign for change. We're in this together.

Become part of the family

We're united through blood, and we're there for each other no matter what.

Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.

Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.

Through our community, we find the freedom, opportunity and fun in life after diagnosis.

Find out what we do

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

20 Nov 21

Introducing our new identity

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19 Nov 21

Launch of New women’s bleeding symptom checker

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26 Oct 21

Opportunity To Take Part In Our Survey On The Compensation Framework Study

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15 Oct 21

Alex Dowsett to attempt the Hour Record on 3 November in Mexico

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Read more news articles

Upcoming & recent events at the Haemophilia Society

Virtual
  • 07 Dec 21 at 6:30pm

Compensation survey results

Join us on Tuesday, 7 December at 6.30pm to discuss the results of our compensation…
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Save the Date
  • 08 Dec 21 at 7:00pm

Christmas Carol Service

Join us for an evening of traditional carols, choral singing and guest readers for our…
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Members Only
Save the Date
  • 26 Feb 22 - 27 Feb 22

Newly Diagnosed Families Weekend – Northern Ireland

We are delighted to announce Haemophilia NI and the Haemophilia Society will be holding a…
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Members Only
Save the Date
  • 05 Mar 22

Talking Red Live

Thousands of women struggle with common symptoms – such as heavy periods and frequent bruising…
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Members Only
Save the Date
  • 24 Jun 22 - 26 Jun 22

HaemFest 2022

Come to our entertaining camping weekend for everyone to get together. Located in the beautiful…
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Members Only
Save the Date
  • 27 Jul 22 - 31 Jul 22

Youth Camp – 2022

If you have a bleeding disorder or you are a sibling of someone who does,…
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See all events

Members Stories

Sonya’s story

Sonya, 54, lives just outside Hull and is one of five sisters. Her father had…
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Lynsey and Joseph

People can understandably find it really difficult when they are given a haemophilia diagnosis, and worry that it’s…
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Mardin’s Story

My name is Mardin, and I am 25 years old. I am from Iraq. I…
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Gemma’s Story

Caring for someone living with a bleeding disorder in lockdown has taught me that the…
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Read all members stories

Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Facebook, Twitter, Instagram and e-mail. But if you’re more of a people person, we’re still on the end of a phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & B | Von Willebrand Disease

Browse bleeding disorder information

Thank you to our sponsors

We are thankful to the companies below who have supported the update of our website in 2021:

Novo Nordisk has provided sponsorship to The Haemophilia Society to support with the costs of updating this website. Novo Nordisk has had no control or influence over the information/content included on this website unless where stated.

The update of this website was supported by a restricted grant from Chugai Pharma UK Ltd and Roche Products Limited. Chugai Pharma UK Ltd and Roche Products Limited has had no control or influence over the information/content included on this website unless where stated.