• Coronavirus - Covid-19

    Coronavirus and bleeding disorders - Frequently asked questions

Donate Now

Support those with bleeding disorders in the UK

Campaign with us

Campaign alongside us to influence policy for the better

Become a Member

Find out about the benefits of being a member and join us now

The Haemophilia Society is the only UK-wide charity for all those affected by a genetic bleeding disorder. We help people with genetic bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.

The content of this website is for information only, it is not intended to be a substitute for professional medical advice, diagnosis or treatment.

The Haemophilia Society cannot give out any medical, diagnosis or treatment advice and recommend that you speak to your haemophilia team or GP directly for advice on your healthcare concern.

Find out what we do

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

02 Sep 21

Family places available for Over The Wall ‘Camp in the Cloud’

Read more
26 Aug 21

Why taking part in research really matters

Read more
02 Jul 21

Infusion kit research – can you help?

Read more
01 Jul 21

Healthcare at Home becomes Sciensus

Read more
Read more news articles

Upcoming & recent events at the Haemophilia Society

Virtual
  • Various across the UK

Complete A Virtual Run

Keep fit and healthy this year, have fun and raise vital funds for The Haemophilia…
Read more
Members Only
  • Greater Manchester & Essex
  • FREE for members

Newly Diagnosed Weekend

Our Newly Diagnosed Weekends (NDW) are free events that support parents who have recently found…
Read more
Virtual
  • 26 May 21 at 6:00pm

Meeting to discuss latest evidence from the Infected Blood Inquiry

Join us on Wednesday, 26 May at 6pm to discuss the latest evidence from the…
Read more
  • 27 Jun 21 at 9:00am
  • Windsor Great Park
  • £20pp plus min £200 sponsorship

Parallel

Be a part of the world’s first all-inclusive mass participation event set in iconic Windsor…
Read more
See all events

Members Stories

Lynsey and Joseph

People can understandably find it really difficult when they are given a haemophilia diagnosis, and worry that it’s…
Read more

Mardin’s Story

My name is Mardin, and I am 25 years old. I am from Iraq. I…
Read more

Gemma’s Story

Caring for someone living with a bleeding disorder in lockdown has taught me that the…
Read more

Sunny’s Story

My name is Sunny and I suffer from severe Von Willebrand Type 3. Generally, lockdown…
Read more
Read all members stories

Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Twitter, Facebook, e-mail. But if that’s all a bit too high-tech, we’re also on the end of the phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & B | Von Willerbrand Disease

Browse bleeding disorder information

Thank you to our sponsors

We are thankful to the companies below who have supported the update of our website in 2021:

Novo Nordisk has provided sponsorship to The Haemophilia Society to support with the costs of updating this website. Novo Nordisk has had no control or influence over the information/content included on this website unless where stated.

The update of this website was supported by a restricted grant from Chugai Pharma UK Ltd and Roche Products Limited. Chugai Pharma UK Ltd and Roche Products Limited has had no control or influence over the information/content included on this website unless where stated.