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    Coronavirus and bleeding disorders - Frequently asked questions

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Support those with bleeding disorders in the UK

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The Haemophilia Society is the only UK-wide charity for all those affected by a genetic bleeding disorder. We help people with genetic bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.

The content of this website is for information only, it is not intended to be a substitute for professional medical advice, diagnosis or treatment.

The Haemophilia Society cannot give out any medical, diagnosis or treatment advice and recommend that you speak to your haemophilia team or GP directly for advice on your healthcare concern.

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

15 Jun 21

Lack of awareness of women’s bleeding disorders is delaying diagnosis

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07 May 21

Face-to-face PIP assessments to resume in England

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26 Apr 21

The Haemophilia Society and Healthcare at Home –working together to improve the service to patients with bleeding disorders

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22 Apr 21

Takeda UK and The Haemophilia Society launch national survey results uncovering new insights into mental health impact for people living with bleeding disorders

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Upcoming & recent events at the Haemophilia Society

Virtual
  • Various across the UK

Complete A Virtual Run

Keep fit and healthy this year, have fun and raise vital funds for The Haemophilia…
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Members Only
  • Throughout the UK
  • FREE for members

Newly Diagnosed Weekend

Our Newly Diagnosed Weekends (NDW) are free events that support parents who have recently found…
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Virtual
  • 26 May 21 at 6:00pm

Meeting to discuss latest evidence from the Infected Blood Inquiry

Join us on Wednesday, 26 May at 6pm to discuss the latest evidence from the…
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  • 27 Jun 21 at 9:00am
  • Windsor Great Park
  • £20pp plus min £200 sponsorship

Parallel

Be a part of the world’s first all-inclusive mass participation event set in iconic Windsor…
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Members Stories

Mardin’s Story

My name is Mardin, and I am 25 years old. I am from Iraq. I…
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Gemma’s Story

Caring for someone living with a bleeding disorder in lockdown has taught me that the…
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Sunny’s Story

My name is Sunny and I suffer from severe Von Willebrand Type 3. Generally, lockdown…
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Dana’s Story

I am a carrier of Severe haemophilia A and have mild haemophilia myself, we live…
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Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

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Reach Out

We can be found on all the usual online channels – Twitter, Facebook, e-mail. But if that’s all a bit too high-tech, we’re also on the end of the phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & BVon Willerbrand Disease

Browse bleeding disorder information

Thank you to our sponsors

We are thankful to the companies below who have supported the update of our website in 2021:

Novo Nordisk has provided sponsorship to The Haemophilia Society to support with the costs of updating this website. Novo Nordisk has had no control or influence over the information/content included on this website unless where stated.

The update of this website was supported by a restricted grant from Chugai Pharma UK Ltd and Roche Products Limited. Chugai Pharma UK Ltd and Roche Products Limited has had no control or influence over the information/content included on this website unless where stated.