Get involved

Donate time, money, advice, support – every little thing helps give hope to people with a bleeding disorder.

Make a difference

Share stories and advice, campaign for change. We're in this together.

Become part of the family

We're united through blood, and we're there for each other no matter what.

Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.

Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.

Through our community, we find the freedom, opportunity and fun in life after diagnosis.

Find out what we do

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

30 Oct 24

The Haemophilia and Bleeding Disorders Alliance

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22 Oct 24

Mountain climb raises £3,000

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16 Oct 24

Three UK representatives elected to key EHC committee 

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Read more news articles

Upcoming & recent events at the Haemophilia Society

  • 16 Nov 24 - 17 Nov 24

Alton Towers Kids race plus 5k, 10k & Half Marathon

Registration Deadline: 6 November 2024 You can run, jog, or walk. This route is suitable…
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Members Only
Save the Date
  • 16 Nov 24 at 9:00am

The Big Get-Together 2024

Sponsors Registration now open! Join us for our Big Get-Together – our conference for everyone…
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  • 01 Dec 24 - 31 Dec 24

Dive into the festive spirit with a Christmas Skydive

Minimum sponsorship of £395 for a tandem skydive Why not combine the thrill of skydiving…
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Save the Date
  • 04 Dec 24 at 7:00pm

Christmas Carol Service, 2024

Celebrate the festive season with us at our highly anticipated Christmas Carol Service! It’s that…
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  • 04 Dec 24 - 05 Dec 24 at 7:00pm

Santa in the City – London

Registration Deadline: 26 November 2024 You can run, jog, or walk. This route is suitable…
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  • 25 Jan 25 - 26 Jan 25

London Winter Walk

A great event to walk off the Christmas celebrations, and to kick start your New…
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Members Only
Save the Date
  • 04 Apr 25 - 06 Apr 25

Newly Diagnosed Families Weekend 2025

Our Newly Diagnosed Families Weekend is a special event exclusively designed for families who have…
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  • 06 Apr 25

London Landmarks Half Marathon 2025

Registration fee £35 (excluding booking fee) Minimum sponsorship £500 Our partner Run For Charity, with…
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  • 27 Apr 25

London Marathon 2025

Marathon Day next year is Sunday 27 April 2025. The London Marathon is one of…
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  • 25 May 25

CANCELLED – 2025 Ford Ride London-Essex 100

RideLondon, which has featured a Women’s UCI WorldTour race, mass participation rides over 100 miles,…
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Members Only
Save the Date
  • 28 Jul 25 - 01 Aug 25

Youth Camp 2025

Monday 28 July – Friday 1 August 2025. Calling all children with a bleeding disorder…
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Members Only
Save the Date
  • 28 Aug 25 - 31 Aug 25 at 4:00pm to 1:00pm

Inbetweeners 2025

Thursday 28 August – Sunday 31 August 2025 Are you a young person aged 16-18…
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  • 20 Sep 25

Swim Serpentine 2025

Calling all open-water enthusiasts! Swim Serpentine is a fantastic opportunity to take on a challenge…
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See all events

Members Stories

Elliott’s Story

‘I had gene therapy five years ago – and haven’t had a bleed since’  Thanks…
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Joey’s triple fund-raising inspirations

Three very special people with bleeding disorders inspired Joey Beavis’ insane fundraising challenge of walking…
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Letter to the Prime Minister June 2023

Dear Prime Minister,  We are writing to you as the charities that work with, support…
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Henry’s Story

Carreen, from Surrey, got in touch with THS to let us know that activities from…
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Read all members stories

Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Facebook, Twitter, Instagram and e-mail. But if you’re more of a people person, we’re still on the end of a phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & B | Von Willebrand Disease

Browse bleeding disorder information