Members Stories

These pages document some of our members’ own stories from around the UK. They highlight a variety of experiences depending on the condition they have, how severe it is, and the care and treatment available.

It’s difficult to generalise on the impact that bleeding disorders have on people’s lives. Whatever your situation, we’re here to support you through the good times and the tough times.

When reading these stories, please remember how much care and treatment has changed in recent years. To find out more about this, or any of the issues raised here contact us.

Thanks to those who have shared their experiences here. If you’d be happy to tell your story (we’ll keep your identity confidential if you wish), please contact us.

Mardin’s Story

My name is Mardin, and I am 25 years old. I am from Iraq. I…
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Gemma’s Story

Caring for someone living with a bleeding disorder in lockdown has taught me that the…
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Sunny’s Story

My name is Sunny and I suffer from severe Von Willebrand Type 3. Generally, lockdown…
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Dana’s Story

I am a carrier of Severe haemophilia A and have mild haemophilia myself, we live…
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Karen’s Story

Living with a bleeding disorder in lockdown has taught me that it shouldn’t be any…
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Rosie’s Story

Living through lockdown caring for someone with a bleeding disorder wasn’t easy. In the back…
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Carly’s story

Caring for someone with a bleeding disorder during the pandemic has taught me….that even when…
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Ellen’s Story

The Haemophilia Society matters to me because they make you feel part of a community…
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Lesley’s Story

The Haemophilia Society matters to me because I know there’s other people just like me….
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Nicola’s Story

We’re joining Team 70! Nicola and her family will be taking up the 7.0 fundraising…
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Simona’s Story

The Haemophilia Society matters to me because….it’s really helpful to know that someone is actually…
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Jodie’s Story

When we attended the newly diagnosed family weekend in Longleat in 2018 Thomas was 9…
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Susan’s Story

It gave my husband and I help, hope and understanding at a time when there…
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Donna’s Story

The Haemophilia Society has been there for myself and my son since he was born…
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Bill’s Story

Bill Payne was born the same year The Haemophilia Society was created and remained loyal…
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Keith’s Story

Keith Colthorpe has lived with severe haemophilia all his life – yet thanks to a…
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Bailey’s Story

Hi, I am Bailey and I have severe haemophilia A. During my childhood, I was…
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Hannah’s Story

For over 25 years the society has provided my family with support. From my brother’s…
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Sam’s story

My name is Kerry. Before September 2018, I had absolutely no idea I was a…
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Paul’s Story

On 4 February 2001 I was born, as a known carrier my mum knew there…
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Ethan’s story

My name is Ethan and I am 19 years old. I was born with severe…
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Matty’s Story

Matt, 21, has been a Youth Ambassador for the Haemophilia Society for two years. Growing…
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Zoe’s story

Hello, my name is Zoe, I am 15 years old and at the age of…
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Alan’s story

A rally good time! My name is Alan, and one night in September last year…
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