News

07 May 21

Face-to-face PIP assessments to resume in England

With lockdown restrictions in England easing, face-to-face PIP assessments will slowly be returning – with…
Read more
26 Apr 21

The Haemophilia Society and Healthcare at Home –working together to improve the service to patients with bleeding disorders

We have been working with Healthcare At Home recently to improve the service to patients…
Read more
22 Apr 21

Takeda UK and The Haemophilia Society launch national survey results uncovering new insights into mental health impact for people living with bleeding disorders

The Bleeding Disorders Patient Experience Survey has been initiated and funded by Takeda and developed…
Read more
20 Apr 21

Watch Our World Haemophilia Day Q&A

On Thursday, 15 April we hosted our first ever live Q&A to celebrate World Haemophilia…
Read more
01 Apr 21

Healthcare at Home – product recall statement

Healthcare at Home have been advised by the Medicines and Healthcare products Regulatory Agency (MHRA)…
Read more
18 Mar 21

Take part in the Coping with COVID-19 Community Survey

This survey aims to examine the impact of the current COVID-19 pandemic on the mental…
Read more
11 Mar 21

The Haemophilia Society responds to NICE Consultations

Starting in 2020, NICE has been running a series of consultations looking at their processes for health…
Read more
09 Mar 21

Race around the world with our Yorkshire local group

Our Yorkshire local group has recently reformed with an aim to raise awareness of bleeding disorders,…
Read more
01 Mar 21

Update to Hemlibra (emicizumab) Convenience Kits

Following approval from the European Medicines Agency (EMA) last August, Roche-Chugai will be introducing updated…
Read more
01 Mar 21

Share your thoughts on the services for people with bleeding disorders

Do you have or care for someone with a bleeding disorder? How can we improve…
Read more
28 Feb 21

Show your support on Rare Disease Day 2021

In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
Read more
23 Feb 21

Supporter takes on 300,000 step challenge for The Haemophilia Society

I’m taking on the challenge to walk 300,000 steps in March to raise money for…
Read more