Bleeding and Belonging – finding meaning through poetry
We caught up with mother of two Alex Akrimi, who shared her experience of parenting…Read more
News
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‘I didn’t know anyone else like me’ – living as a trans woman with severe haemophilia A
Bleeding with pride – For Elizabeth, growing up with severe haemophilia a often meant feeling different from the people around her. Frequent bleeds and restrictions on physical activity left her feeling excluded during childhood, long before she began to understand her gender identity.Community Matters – give us your feedback
Our bi-annual members magazine ‘Community Matters’ aims to keep our community updated with the latest…Read more
From my family to yours. Why we’ve chosen to sponsor Family Camp in memory of Richard.
Despite no family history Phil and I had three boys, all with severe haemophilia. Richard, our eldest, was diagnosed…Read more
The Haemophilia Society receives one-year government grant
We are very pleased to announce that we have accepted a grant of £846,060 from…Read more
Hemlibra administration kit needle information (updated April 2026)
In January 2026, manufacturer of Hemlibra, also known as emicizumab, informed us that a small number of the…Read more
2025 THS Superstar Awards announced
At our Big Get-Together in Northampton on Saturday 22 November, we announced the winners of…Read more
Vote for ‘Making Waves: The Gozo-Malta Swim’ in the 2026 Smiley Charity Film Awards
Vote now! Our film ‘Making Waves: The Gozo-Malta Swim’ has been put forward for the…Read more
Hezekiah – the haemophilia hound dog
What has the Haemophilia Society got to do with a giant cuddly dog which was…Read more
THS Superstar Awards 2025
Following on from the success of last year’s ‘Recognition Awards’ in which a doctor, nurse…Read more
Haemophilia A treatment extended to moderates
More people will be eligible to use emicizumab, the only treatment currently available for haemophilia…Read more
Lydia, Sam and Jude’s Newly Diagnosed Weekend experience
Lydia and her partner were in complete shock when their three-month-old son Jude was diagnosed…Read more