News

Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies

The Haemophilia Society is part of a group of rare disease charities called the Cell…
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Thank you for your support of Ukraine!

We’ve been overwhelmed by your generous support of our Ukraine emergency appeal to help people…
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Government needs to publish study on Compensation Framework for people affected by contaminated blood products

The Haemophilia Society, MPs and other campaigners have written to the Government demanding they publish…
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Advances in inhibitor knowledge and treatment

Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…
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Success at Talking Red Live

Talking Red Live in York in early March brought together women with bleeding disorders from…
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New Treatment Options for Glanzmann’s on the Horizon

Last month clinicians and researchers from across the world gathered virtually at EAHAD, a congress…
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Show your support on Rare Disease Day 2022

In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
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Reporting from EAHAD, which met virtually for its 2022 Congress on Bleeding Disorder Treatment and Care

In February, the European Association for Haemophilia and Allied Disorders had their annual meeting. We…
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A Life Inhabited

Thanks to advances in the treatments made available in the last few years, developing inhibitors…
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We’re going to Haemfest! Are you?

James and his family have signed up for Haemfest 2022, our free camping event which…
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New Health and Care Bill will reorganise the NHS

The Health and Care Bill, which is currently being debated in parliament, has the potential…
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NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders

Last year the Government announced plans for a new fund to allow people with rare diseases in…
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