News

Update to Hemlibra (emicizumab) Convenience Kits

Following approval from the European Medicines Agency (EMA) last August, Roche-Chugai will be introducing updated…
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Share your thoughts on the services for people with bleeding disorders

Do you have or care for someone with a bleeding disorder? How can we improve…
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Show your support on Rare Disease Day 2021

In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
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Supporter takes on 300,000 step challenge for The Haemophilia Society

I’m taking on the challenge to walk 300,000 steps in March to raise money for…
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Fitusiran update following EAHAD 2021 Congress

During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…
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EHC publishes update on the nasal desmopressin spray recall

In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…
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Take part in survey about your experiences of the COVID-19 vaccine

The haemophilia team at Bristol have designed a short questionnaire (with input from some local…
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New guidelines for diagnosis and management of von Willebrand Disease published

Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…
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Jamie’s Global Racetrack Walk

Jamie who suffers from severe haemophilia B is walking almost 95 miles, an equivalent of…
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Sign up to our 36 challenge today!

More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder,…
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Talented mum raises funds for The Haemophilia Society

My second-born son Bobby was born in May 2019, after a short stay in hospital…
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Your questions about the COVID-19 vaccine and bleeding disorders

Following the official Government guidance giving the COVID-19 vaccine and to people with bleeding disorders…
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