Terms and Conditions
About us
The Haemophilia Society is the only UK-wide charity for everyone affected by a bleeding disorder. We support a community of members, supporters and healthcare professionals through information, services, events, campaigning and advocacy.
We are a registered charity governed by a Board of Trustees and supported by a small staff team based in London, working alongside volunteers across the UK.
Our charitable purpose is to improve care, treatment and quality of life for people affected by bleeding disorders, ensure access to consistent and effective care and amplify the voices of our community.
Use of our website
By using our website, you agree to these Terms and Conditions. If you do not agree, please do not use the site.
The content on this website is provided for general information purposes only. It is not intended to replace advice from your healthcare team or other qualified professionals.
We make reasonable efforts to ensure the information on our website is accurate and up to date, but we do not guarantee that content will always be complete, current or error-free.
Membership, services and events
Membership of the Haemophilia Society is free.
Anyone may apply to become a member. Individuals under the age of 18 are registered as Junior Members and must be signed up alongside an Adult Member (such as a parent or guardian).
We do not contact Junior Members directly, except when they reach the age of 18 (based on the date of birth provided). At that point, we will contact them to ask whether they would like to become an Adult Member in their own right.
When you apply for membership, register for an event, use our services, make a donation, fundraise for us or volunteer, you agree to:
- Provide accurate and up-to-date information
- Comply with any reasonable instructions or guidance provided by staff or volunteers
- Behave respectfully towards staff, volunteers, speakers, healthcare professionals and other participants
We reserve the right to refuse or withdraw membership, event attendance or service access where behaviour is unsafe, inappropriate or contrary to our values.
Donations and fundraising
Donations made through our website or third-party platforms are voluntary and non-refundable unless required by law.
We take reasonable steps to ensure donations are used for the purposes described, but reserve the right to allocate funds in line with our charitable objectives where necessary.
Intellectual property and copyright
All content on this website, including text, images, logos and publications, is protected by copyright and intellectual property law.
You may view, download and print content for personal, non-commercial use. Content must not be copied, reproduced, distributed or used for commercial purposes without our written permission.
Links to third-party websites
Our website may include links to third-party websites. These are provided for convenience only. We are not responsible for the content, policies or practices of third-party sites.
Limitation of liability
To the fullest extent permitted by law, the Haemophilia Society is not liable for any loss or damage arising from use of this website, attendance at events, or reliance on information provided, except where liability cannot be excluded by law.
Registered Office Address
Our registered office address is: The Haemophilia Society, 52B Borough High Street, London, SE1 1XN.
Privacy Notice
For information about how we collect, use and protect your personal data, please refer to our Privacy Notice.
Cookies
Our website uses cookies to improve user experience. By continuing to use the site, you consent to the use of cookies. Please see our Cookie Policy for details.
ICO Registration
We are registered with the Information Commissioner’s Office (ICO). Our registration number is ZB982987.
Acceptable Use Policy
Users must not use this website for unlawful purposes, attempt to gain unauthorised access or engage in any activity that could harm the website or other users.
Changes to these Terms and Conditions
We may update these Terms and Conditions from time to time. Any changes will be published on our website.
Dispute Resolution
If you have a complaint or dispute regarding this website, please contact us in the first instance. Any disputes arising from the use of this website shall be subject to the laws of England and Wales.
Charitable Status
The Haemophilia Society is a registered charity and registered company limited by guarantee.
Registered charity in England & Wales no 288260
Registered charity in Scotland no SC039732
Company registered in England no 1763614