News

New Treatment Options for Glanzmann’s on the Horizon

Last month clinicians and researchers from across the world gathered virtually at EAHAD, a congress…
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Reporting from EAHAD, which met virtually for its 2022 Congress on Bleeding Disorder Treatment and Care

In February, the European Association for Haemophilia and Allied Disorders had their annual meeting. We…
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A Life Inhabited

Thanks to advances in the treatments made available in the last few years, developing inhibitors…
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New Health and Care Bill will reorganise the NHS

The Health and Care Bill, which is currently being debated in parliament, has the potential…
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NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders

Last year the Government announced plans for a new fund to allow people with rare diseases in…
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Launch of New women’s bleeding symptom checker

We’re proud to have launched an easy-to-use online symptom checker to help women and girls with heavy periods find out if…
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Alex Dowsett to attempt the Hour Record on 3 November in Mexico

We are beyond excited that British professional cyclist and Haemophilia Society member Alex Dowsett will attempt to…
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Useful new mobile app on rare bleeding disorders & novel therapies

The European Haemophilia Consortium (EHC) has launched a really useful mobile app as an information…
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Conservative Party Conference 2021

Our Policy and Public Affairs Manager Jeff Courtney was at the Conservative party conference this…
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Health Policy at Labour Party Conference

The Labour Party met down in sunny Brighton this week for their annual conference. There…
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Why taking part in research really matters

William McKeown, a doctor in Northern Ireland – who also has severe haemophilia A – has recently…
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Infusion kit research – can you help?

We have been approached by a fieldwork research agency, Acumen Fieldwork, who are working with…
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