News

Community Matters – give us your feedback

Our bi-annual members magazine ‘Community Matters’ aims to keep our community updated with the latest…
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From my family to yours. Why we’ve chosen to sponsor Family Camp in memory of Richard. 

Despite no family history Phil and I had three boys, all with severe haemophilia. Richard, our eldest, was diagnosed…
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The Haemophilia Society receives one-year government grant

We are very pleased to announce that we have accepted a grant of £846,060 from…
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Hemlibra administration kit needle information (updated April 2026)

In January 2026, manufacturer of Hemlibra, also known as emicizumab, informed us that a small number of the…
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2025 THS Superstar Awards announced

At our Big Get-Together in Northampton on Saturday 22 November, we announced the winners of…
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Vote for ‘Making Waves: The Gozo-Malta Swim’ in the 2026 Smiley Charity Film Awards

Vote now! Our film ‘Making Waves: The Gozo-Malta Swim’ has been put forward for the…
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Hezekiah – the haemophilia hound dog

What has the Haemophilia Society got to do with a giant cuddly dog which was…
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THS Superstar Awards 2025

Following on from the success of last year’s ‘Recognition Awards’ in which a doctor, nurse…
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Haemophilia A treatment extended to moderates

More people will be eligible to use emicizumab, the only treatment currently available for haemophilia…
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Lydia, Sam and Jude’s Newly Diagnosed Weekend experience 

Lydia and her partner were in complete shock when their three-month-old son Jude was diagnosed…
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First NHS patient receives gene therapy for haemophilia B

A 44-year-old man has become the first person to receive gene therapy for haemophilia B…
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Have your say on bleeding disorder care

Have your say on new guidelines which set the standards of care for all haemophilia…
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