News

23 Feb

Fitusiran update following EAHAD 2021 Congress

During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…
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08 Feb

EHC publishes update on the nasal desmopressin spray recall

In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…
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05 Feb

Take part in survey about your experiences of the COVID-19 vaccine

The haemophilia team at Bristol have designed a short questionnaire (with input from some local…
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28 Jan

New guidelines for diagnosis and management of von Willebrand Disease published

Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…
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26 Jan

Jamie’s Global Racetrack Walk

Jamie who suffers from severe haemophilia B is walking almost 95 miles, an equivalent of…
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25 Jan

Sign up to our 36 challenge today!

More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder,…
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22 Jan

Talented mum raises funds for The Haemophilia Society

My second-born son Bobby was born in May 2019, after a short stay in hospital…
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07 Jan

Your questions about the COVID-19 vaccine and bleeding disorders

Following the official Government guidance giving the COVID-19 vaccine and to people with bleeding disorders…
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11 Dec

Understanding the preferences of people with haemophilia for gene therapy

You are invited to take part in a study which aims to explore the preferences…
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03 Dec

Change to presentation shown at our Annual Member Conference

We recently received a query with regard to some of the information presented at our…
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02 Dec

Take Part in the Newly Launched National Bleeding Disorders Patient Experience Survey

We are proud to launch the Bleeding Disorders Patient Experience Survey, developed in partnership with…
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30 Nov

Joint statement from The Haemophilia Society and Healthcare at Home

Constructive discussions held between Healthcare at Home and The Haemophilia Society Senior representatives from The…
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