News

09 Mar 21

Race around the world with our Yorkshire local group

Our Yorkshire local group has recently reformed with an aim to raise awareness of bleeding disorders,…
Read more
01 Mar 21

Update to Hemlibra (emicizumab) Convenience Kits

Following approval from the European Medicines Agency (EMA) last August, Roche-Chugai will be introducing updated…
Read more
01 Mar 21

Share your thoughts on the services for people with bleeding disorders

Do you have or care for someone with a bleeding disorder? How can we improve…
Read more
28 Feb 21

Show your support on Rare Disease Day 2021

In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
Read more
23 Feb 21

Supporter takes on 300,000 step challenge for The Haemophilia Society

I’m taking on the challenge to walk 300,000 steps in March to raise money for…
Read more
23 Feb 21

Fitusiran update following EAHAD 2021 Congress

During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…
Read more
08 Feb 21

EHC publishes update on the nasal desmopressin spray recall

In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…
Read more
05 Feb 21

Take part in survey about your experiences of the COVID-19 vaccine

The haemophilia team at Bristol have designed a short questionnaire (with input from some local…
Read more
28 Jan 21

New guidelines for diagnosis and management of von Willebrand Disease published

Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…
Read more
26 Jan 21

Jamie’s Global Racetrack Walk

Jamie who suffers from severe haemophilia B is walking almost 95 miles, an equivalent of…
Read more
25 Jan 21

Sign up to our 36 challenge today!

More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder,…
Read more
22 Jan 21

Talented mum raises funds for The Haemophilia Society

My second-born son Bobby was born in May 2019, after a short stay in hospital…
Read more