News

Healthcare at Home becomes Sciensus

From 5 July 2021, Healthcare at Home is changing its name to Sciensus. It will…
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Lack of awareness of women’s bleeding disorders is delaying diagnosis

Women’s bleeding disorders can have a big impact physically, psychologically and financially, yet many people…
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Face-to-face PIP assessments to resume in England

With lockdown restrictions in England easing, face-to-face PIP assessments will slowly be returning – with…
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The Haemophilia Society and Healthcare at Home –working together to improve the service to patients with bleeding disorders

We have been working with Healthcare At Home recently to improve the service to patients…
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Takeda UK and The Haemophilia Society launch national survey results uncovering new insights into mental health impact for people living with bleeding disorders

The Bleeding Disorders Patient Experience Survey has been initiated and funded by Takeda and developed…
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Healthcare at Home – product recall statement

Healthcare at Home have been advised by the Medicines and Healthcare products Regulatory Agency (MHRA)…
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The Haemophilia Society responds to NICE Consultations

Starting in 2020, NICE has been running a series of consultations looking at their processes for health…
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Update to Hemlibra (emicizumab) Convenience Kits

Following approval from the European Medicines Agency (EMA) last August, Roche-Chugai will be introducing updated…
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Fitusiran update following EAHAD 2021 Congress

During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…
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EHC publishes update on the nasal desmopressin spray recall

In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…
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New guidelines for diagnosis and management of von Willebrand Disease published

Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…
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Talented mum raises funds for The Haemophilia Society

My second-born son Bobby was born in May 2019, after a short stay in hospital…
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