CRG PPV application process now open
Would you like to take on a role which can really influence what care should…Read more
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Living with von Willebrand disorder, part 4
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Living with von Willebrand disorder, part 3
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Living with von Willebrand disorder, part 2
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Living with von Willebrand Disorder Part 1.5
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
The Beginning – Living with von Willebrand Disorder Part 1
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Clive Smith: I went to Conservative Party Conference to raise the issues facing our members
The Conservative Party met in Birmingham last week for their annual party conference. I went…Read more
Infected Blood Inquiry interim report recommends interim compensation
The Infected Blood Inquiry has this afternoon published an Interim Report from the chair Sir Brian…Read more
Putting Access to Physiotherapy on the Agenda in Parliament
The Haemophilia Society this week brought together key people from the world of haemophilia care…Read more
First Gene Therapy Treatment for Haemophilia to be Licensed
Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…Read more
European Conference Discusses Better Support For Women
The weekend of 21 and 22 May 2022 saw the second ever European conference dedicated to…Read more
Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies
The Haemophilia Society is part of a group of rare disease charities called the Cell…Read more