EHC publishes update on the nasal desmopressin spray recall
In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…
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New guidelines for diagnosis and management of von Willebrand Disease published
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…
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Talented mum raises funds for The Haemophilia Society
My second-born son Bobby was born in May 2019, after a short stay in hospital…
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Understanding the preferences of people with haemophilia for gene therapy
You are invited to take part in a study which aims to explore the preferences…
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Joint statement from The Haemophilia Society and Healthcare at Home
Constructive discussions held between Healthcare at Home and The Haemophilia Society Senior representatives from The…
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APPG on Haemophilia and Contaminated Blood launch final report
The APPG on Haemophilia and Contaminated Blood are a group of MPs who campaign for…
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Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease
We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi…
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Take part in exciting new research in partnership with Newcastle University
Are you a caregiver for a young person with haemophilia? Would you like to take…
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Haemophilia centre will return to its original base at the Royal Victoria Infirmary
We recently wrote to The Newcastle upon Tyne Hospitals NHS Foundation Trust on behalf of…
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EHC Statement on Desmopressin Nasal Sprays availability
Late last week, we were informed of an international recall of all Ferring Parmaceuticals Limited nasal sprays…
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In memory of Jane Tibbutt
Jane Tibbutt, who died, aged 80, in May 2020, lived with a bleeding disorder and,…
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Home delivery – tell us about it
If you get your medication through home delivery, we would like to hear from you….
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