News

Anxious and worried right now? You’re completely normal!

Most of us are feeling stressed and anxious at the moment, but how do we…
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Update from the European Haemophilia Consortium

Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there…
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MOT due dates extended by six months

MOT due dates for cars, motorcycles and light vans are to be extended by six…
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DWP suspends benefit reviews and reassessments

Reviews and reassessments for disability benefits are being suspended for the next three months as…
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Hemlibra availability with Corona Virus

Following concerns from our community, Roche have issued the following statement about supply and availability…
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NHS England decisions on new treatments for bleeding disorders

The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…
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Scotland step closer to becoming first country in world to make sanitary products free for all women

Last month we welcomed a new scheme that allows schools and colleges in England to…
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Response from NHSBT regarding Corona Virus and blood safety

We understand that our members may have concerns about blood and blood product safety and…
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Want to share your experience of living with, or caring for children with haemophilia A?

We are working with Roche Products Limited and Chugai Pharma UK Ltd to help recruit…
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Our Youth Ambassador Scott has shared his story of how haemophilia impacted his mental wellbeing

It was very difficult as a child to understand why I was being treated differently…
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Roche/Chugai statement regarding particles in vials of Hemlibra®▼ (emicizumab)

During a routine examination of drug product batches, as part of our quality assurance systems…
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The Haemophilia Society welcomes NHSE announcement on Hemlibra

The Haemophilia Society welcomes NHS England’s announcement today that they will now fund a new…
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