APPG holds evidence sessions in Parliament
Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia…Read more
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BBC2 documentary on vCJD
Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef…Read more
Getting information from UKHCDO – an update
The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient…Read more
New resource – Dental Care For Adults With A Bleeding Disorder is launched
We are pleased to announce that our new resource, Dental Care For Adults With A…Read more
Setting priorities for bleeding disorders – final report published
From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…Read more
Response to concerns about Emicuzumab
Recently reports have been shared on social media about deaths relating to a new treatment…Read more
Share your views with NHS England
NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…Read more
APPG Inquiry into Access to Treatment – Call for Evidence
The All-Party Parliamentary Group on Haemophilia and Contaminated Blood has launched an Inquiry into the…Read more
Advocating for Access to New Treatment
This is an exciting time as new treatments and new treatment approaches for bleeding disorders…Read more
Managing Treatment and Access to Products post Brexit
Many of our members have expressed concerns about how access to the treatments they require…Read more
Supporter story – Father is inspired to run the London Marathon after his son is diagnosed with haemophilia A
Hello I am Sam and this is our story about our youngest son Jaxon and…Read more
Supporter story – Caroline Duff and her son Sean take on the London Marathon
I met my husband on the first day of Freshers week at Leeds University in…Read more