Supporter story – Father is inspired to run the London Marathon after his son is diagnosed with haemophilia A
Hello I am Sam and this is our story about our youngest son Jaxon and…Read more
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Supporter story – Caroline Duff and her son Sean take on the London Marathon
I met my husband on the first day of Freshers week at Leeds University in…Read more
Recruiting members to join haemophilia centre review teams
For many years haemophilia centres have been audited every 3 years to assess the quality…Read more
Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families…Read more
Monthly updates launched
So much happens here at The Society, and we want to share all of these…Read more
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with…Read more
DWP Reviewing PIP Applications from People with Bleeding Disorders
In October 2017, the Department for Work and Pensions set up a working group with…Read more
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…Read more
APPG Meeting on the 31st January 2018
On the 31st January 2018 the APPG met to discuss the Contaminated Blood Inquiry and…Read more
Research into the lives of Haemophilia Siblings
Calling all brothers and sisters of people with severe haemophilia A! One of our members…Read more
The Haemophilia Society contributes to Health Select Committee Brexit report
The Health and Social Care Committee in the House of Commons today published its latest…Read more
Early Access for patients with inhibitors to Emicizumab
The MHRA has announced that Emicizumab (previously known as Ace910 and now marketed in the…Read more