News

Haemnet London 2020 project: Share your experiences of haemophilia care to raise money for The Society

Haemnet support health & social care professionals so that excellent care becomes the everyday experience…
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APPG on Haemophilia and Contaminated Blood – Latest Meeting

The APPG on Haemophilia and Contaminated Blood met on the 29th March. The Agenda for…
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Cancelled: APPG meeting March 22 2017

Following reports of an incident in the Westminster area, we’re sorry to say that this…
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Bears4Rare: experts call on government to provide fair and fast access to treatments for rare disease patients

Rare conditions affect approximately 1 in 17 people in the UK.1 Although they are living…
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Response to the Contaminated Blood Announcement and Consultation

Overview The Department of Health (DH) today published a written ministerial statement announcing some changes…
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UK launches FibCLOT®▼ LFB’s human fibrinogen concentrate

LFB Biopharmaceuticals announced today the UK launch of FibCLOT, its human fibrinogen concentrate. This follows…
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Submissions to the Health, Disability and Work Green Paper

The Haemophilia Society produced a submission to the Health, Disability and Work Green Paper consultation…
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Work, Heath and Disability Consultation – Member Input

The Government’s Work, Heath and Disability Consultation closes at the end of this week. The…
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APPG on Haemophilia and Contaminated Blood 8th February

The APPG on Haemophilia and Contaminated Blood met last week on the 8th February to…
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Direct-acting Antiviral (DAA) treatment for Hepatitis C risks Hepatitis B reactivation

New guidance from the Medicines and Healthcare products Regulatory Agency (MHRA) advises that all hepatitis…
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Westminster Justice Summit

The Haemophilia Society attended the Westminster Justice Summit today, hosted by Andy Burnham MP. At…
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Developments in Contaminated Blood Support January 2017

In December and January there have been a number of developments in the Government’s implementation…
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