Recruiting members to join haemophilia centre review teams
For many years haemophilia centres have been audited every 3 years to assess the quality…
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Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families…
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Monthly updates launched
So much happens here at The Society, and we want to share all of these…
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Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with…
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DWP Reviewing PIP Applications from People with Bleeding Disorders
In October 2017, the Department for Work and Pensions set up a working group with…
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New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…
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APPG Meeting on the 31st January 2018
On the 31st January 2018 the APPG met to discuss the Contaminated Blood Inquiry and…
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Research into the lives of Haemophilia Siblings
Calling all brothers and sisters of people with severe haemophilia A! One of our members…
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The Haemophilia Society contributes to Health Select Committee Brexit report
The Health and Social Care Committee in the House of Commons today published its latest…
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Early Access for patients with inhibitors to Emicizumab
The MHRA has announced that Emicizumab (previously known as Ace910 and now marketed in the…
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Updated Guidance for the Special Category Mechanism for people at Stage 1
The BSA which administers the support scheme for people affected by contaminated blood and blood products…
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Remembering on World AIDS Day
On World AIDS Day we think of all people with haemophilia and other bleeding disorders…
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