News

Ross’s tips on staying fit and active

Ross Bennett, one of our youth ambassadors, has recently been interviewed by the European Haemophilia…
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Tegen teaches school friends about haemophilia

We are so impressed by 7-year-old Tegen, from Wiltshire, who gave a talk to her…
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A Week In The Life: Jeff

As part of a series featuring staff at the Haemophilia Society, Jeff Courtney, our Policy…
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Contaminated blood scandal: Update on compensation and redress following meeting with Jeremy Quin MP

Yesterday, 7 March, the All Party Parliamentary Group (APPG) on Haemophilia and Contaminated Blood had…
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Matthew’s Story

Matthew is aiming to complete an astonishing eight endurance events this year to raise thousands…
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Our request to Sir Keir Starmer MP

Today, 1 March, we have written to Sir Keir Starmer MP, to ask that he…
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Show your support on Rare Disease Day on 28 February

In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
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A Week In The Life: Jessica

As part of a series featuring staff at the Haemophilia Society, Jessica Bomford, our Public…
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Thank you for supporting our winter appeal!

We’re excited to tell you that our winter fundraising appeal has raised an incredible £47,000. …
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Christina’s Story

“Nobody in my family knew anything about bleeding disorders, when I was born,” says Christina,…
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Gene Therapy for Haemophilia B to be licensed next year

A gene therapy for haemophilia B has moved a step closer to being licensed for…
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Living with von Willebrand disorder, part 6

Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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