Reporting from EAHAD, which met virtually for its 2022 Congress on Bleeding Disorder Treatment and Care
In February, the European Association for Haemophilia and Allied Disorders had their annual meeting. We…Read more
Written by Aaron Dennis
Read more
A Life Inhabited
Thanks to advances in the treatments made available in the last few years, developing inhibitors…Read more
Launch of New women’s bleeding symptom checker
We’re proud to have launched an easy-to-use online symptom checker to help women and girls with heavy periods find out if…Read more
Alex Dowsett to attempt the Hour Record on 3 November in Mexico
We are beyond excited that British professional cyclist and Haemophilia Society member Alex Dowsett will attempt to…Read more
Useful new mobile app on rare bleeding disorders & novel therapies
The European Haemophilia Consortium (EHC) has launched a really useful mobile app as an information…Read more
Why taking part in research really matters
William McKeown, a doctor in Northern Ireland – who also has severe haemophilia A – has recently…Read more
Infusion kit research – can you help?
We have been approached by a fieldwork research agency, Acumen Fieldwork, who are working with…Read more
Healthcare at Home becomes Sciensus
From 5 July 2021, Healthcare at Home is changing its name to Sciensus. It will…Read more
Lack of awareness of women’s bleeding disorders is delaying diagnosis
Women’s bleeding disorders can have a big impact physically, psychologically and financially, yet many people…Read more
Face-to-face PIP assessments to resume in England
With lockdown restrictions in England easing, face-to-face PIP assessments will slowly be returning – with…Read more
The Haemophilia Society and Healthcare at Home –working together to improve the service to patients with bleeding disorders
We have been working with Healthcare At Home recently to improve the service to patients…Read more
Takeda UK and The Haemophilia Society launch national survey results uncovering new insights into mental health impact for people living with bleeding disorders
The Bleeding Disorders Patient Experience Survey has been initiated and funded by Takeda and developed…Read more