Show your support on Rare Disease Day 2022
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…Read more
Written by Aaron Dennis
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A Life Inhabited
Thanks to advances in the treatments made available in the last few years, developing inhibitors…Read more
We’re going to Haemfest! Are you?
James and his family have signed up for Haemfest 2022, our free camping event which…Read more
Support your wellbeing and join RATW!
Putting your mental health first is not selfish. It’s important to show as much care…Read more
Launch of New women’s bleeding symptom checker
We’re proud to have launched an easy-to-use online symptom checker to help women and girls with heavy periods find out if…Read more
Opportunity To Take Part In Our Survey On The Compensation Framework Study
If you or any members of your family has been affected by contaminated blood, we…Read more
Alex Dowsett to attempt the Hour Record on 3 November in Mexico
We are beyond excited that British professional cyclist and Haemophilia Society member Alex Dowsett will attempt to…Read more
Meeting in the East Midlands
If you’d like to meet other people in the East Midlands affected by bleeding disorders,…Read more
Family places available for Over The Wall ‘Camp in the Cloud’
We’re super excited to offer 10 lucky Haemophilia Society member families the chance to enjoy…Read more
Why taking part in research really matters
William McKeown, a doctor in Northern Ireland – who also has severe haemophilia A – has recently…Read more
Infusion kit research – can you help?
We have been approached by a fieldwork research agency, Acumen Fieldwork, who are working with…Read more
Healthcare at Home becomes Sciensus
From 5 July 2021, Healthcare at Home is changing its name to Sciensus. It will…Read more