In memory of Jane Tibbutt
Jane Tibbutt, who died, aged 80, in May 2020, lived with a bleeding disorder and,…Read more
Written by Aaron Dennis
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Home delivery – tell us about it
If you get your medication through home delivery, we would like to hear from you….Read more
New Framework for products for Haemophilia A
A new framework for buying medicines to manage Haemophilia A came into force across the…Read more
Watch the EHC webinars on women and bleeding disorders
The video recordings of the webinars on women and bleeding disorders held on 28 and…Read more
Update from Board of Trustees Chair, Clive Smith
5 June 2020 – Here is an update from our Chair, Clive Smith. This week…Read more
Peer Review report on centres published today
Today sees the publication of the Overview Report of the Inherited and Acquired Haemophilia and…Read more
Update from Board of Trustees Chair, Clive Smith
29 May 2020 – Here is an update from our Chair, Clive Smith. This week…Read more
Update from Board of Trustees Chair, Clive Smith
22 May 2020 – Here is an update from our Chair, Clive Smith. This week…Read more
Quality Review Service publish peer reviews of the UK’s haemophilia centres
For over a year now, volunteers comprising of patients, parents/carers, HCPs and other advocates from…Read more
Update from the European Haemophilia Consortium
Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there…Read more
Hemlibra availability with Corona Virus
Following concerns from our community, Roche have issued the following statement about supply and availability…Read more
NHS England decisions on new treatments for bleeding disorders
The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…Read more