Home delivery – tell us about it
If you get your medication through home delivery, we would like to hear from you….Read more
Healthcare Posts
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Peer Review report on centres published today
Today sees the publication of the Overview Report of the Inherited and Acquired Haemophilia and…Read more
HBDCA launch new website
The Haemophilia & Bleeding Disorder Counselling Association (HBDCA) have recently launched their new website and…Read more
Quality Review Service publish peer reviews of the UK’s haemophilia centres
For over a year now, volunteers comprising of patients, parents/carers, HCPs and other advocates from…Read more
Anxious and worried right now? You’re completely normal!
Most of us are feeling stressed and anxious at the moment, but how do we…Read more
Update from the European Haemophilia Consortium
Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there…Read more
Hemlibra availability with Corona Virus
Following concerns from our community, Roche have issued the following statement about supply and availability…Read more
NHS England decisions on new treatments for bleeding disorders
The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…Read more
Scotland step closer to becoming first country in world to make sanitary products free for all women
Last month we welcomed a new scheme that allows schools and colleges in England to…Read more
Response from NHSBT regarding Corona Virus and blood safety
We understand that our members may have concerns about blood and blood product safety and…Read more
Want to share your experience of living with, or caring for children with haemophilia A?
We are working with Roche Products Limited and Chugai Pharma UK Ltd to help recruit…Read more
Roche/Chugai statement regarding particles in vials of Hemlibra®▼ (emicizumab)
During a routine examination of drug product batches, as part of our quality assurance systems…Read more