BBC2 documentary on vCJD
Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef…Read more
Healthcare Posts
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Getting information from UKHCDO – an update
The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient…Read more
Setting priorities for bleeding disorders – final report published
From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…Read more
Response to concerns about Emicuzumab
Recently reports have been shared on social media about deaths relating to a new treatment…Read more
Share your views with NHS England
NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…Read more
Managing Treatment and Access to Products post Brexit
Many of our members have expressed concerns about how access to the treatments they require…Read more
Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families…Read more
DWP Reviewing PIP Applications from People with Bleeding Disorders
In October 2017, the Department for Work and Pensions set up a working group with…Read more
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…Read more
A day in the life of a vWD woman: Ria’s story
A day in the life of a vWD woman: Ria’s story The theme of this…Read more
UK launches FibCLOT®▼ LFB’s human fibrinogen concentrate
LFB Biopharmaceuticals announced today the UK launch of FibCLOT, its human fibrinogen concentrate. This follows…Read more
Direct-acting Antiviral (DAA) treatment for Hepatitis C risks Hepatitis B reactivation
New guidance from the Medicines and Healthcare products Regulatory Agency (MHRA) advises that all hepatitis…Read more