Community Matters – give us your feedback
Our bi-annual members magazine ‘Community Matters’ aims to keep our community updated with the latest…Read more
Healthcare Posts
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From my family to yours. Why we’ve chosen to sponsor Family Camp in memory of Richard.
Despite no family history Phil and I had three boys, all with severe haemophilia. Richard, our eldest, was diagnosed…Read more
The Haemophilia Society receives one-year government grant
We are very pleased to announce that we have accepted a grant of £846,060 from…Read more
Hemlibra administration kit needle information (updated April 2026)
In January 2026, manufacturer of Hemlibra, also known as emicizumab, informed us that a small number of the…Read more
Hezekiah – the haemophilia hound dog
What has the Haemophilia Society got to do with a giant cuddly dog which was…Read more
THS Superstar Awards 2025
Following on from the success of last year’s ‘Recognition Awards’ in which a doctor, nurse…Read more
Haemophilia A treatment extended to moderates
More people will be eligible to use emicizumab, the only treatment currently available for haemophilia…Read more
First NHS patient receives gene therapy for haemophilia B
A 44-year-old man has become the first person to receive gene therapy for haemophilia B…Read more
Have your say on bleeding disorder care
Have your say on new guidelines which set the standards of care for all haemophilia…Read more
New treatment for severe haemophilia B approved
Marstacimab, a new treatment for severe haemophilia B which can be injected under the skin,…Read more
How an eight-year-old boy inspired the foundation of the Haemophilia Society
When Joseph O’Rourke co-founded the Haemophilia Society in 1950, very few people in the medical…Read more
#Team THS London Marathon ’25 – Luke’s story
Luke will run the London Marathon on 27 April in memory of his much-missed dad,…Read more