Glanzmann’s leading advocate set for UK visit
We’re excited to be welcoming Taylor Anne Burtz, President and Chairman of the USA-based Glanzmann’s…Read more
Events Posts
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VWD awareness day in Sheffield
More than 50 adults with von Willebrand disorder (VWD) got together for a day of…Read more
We’re going to Haemfest! Are you?
James and his family have signed up for Haemfest 2022, our free camping event which…Read more
Jamie’s Global Racetrack Walk
Jamie, who has severe haemophilia B, is walking almost 95 miles, an equivalent of a…Read more
Change to presentation shown at our Annual Member Conference
We recently received a query with regard to some of the information presented at our…Read more
Offering new families expert support
On 31 October 2020 we held our first Newly Diagnosed virtual event. We didn’t want…Read more
Bleeding Matters live! Virtual consultations – making the most of new reality
At our recent webinar we heard from Gary Benson, centre director and Helen Hanson, haemophilia…Read more
First virtual member conference a great success!
On Saturday 14 November we held our first virtual member conference and AGM, where we…Read more
Join us on Saturday 14 November for our online bleeding disorders conference
We’ve brought together experts in bleeding disorder care to talk about treatment, give practical advice…Read more
School and Bleeding Disorders webinar.
Join us on Thursday 13 August at 7pm for our School and Bleeding Disorders webinar….Read more
WFH World Congress in Malaysia cancelled
The World Federation of Hemophilia has called off its World Congress in Malaysia as a…Read more
Supporter story – Caroline Duff and her son Sean take on the London Marathon
I met my husband on the first day of Freshers week at Leeds University in…Read more