Awareness Posts

‘I didn’t know anyone else like me’ – living as a trans woman with severe haemophilia A

Bleeding with pride – For Elizabeth, growing up with severe haemophilia a often meant feeling different from the people around her. Frequent bleeds and restrictions on physical activity left her feeling excluded during childhood, long before she began to understand her gender identity.

Vote for ‘Making Waves: The Gozo-Malta Swim’ in the 2026 Smiley Charity Film Awards

Vote now! Our film ‘Making Waves: The Gozo-Malta Swim’ has been put forward for the…
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Dental care – what’s your experience?

We’re launching a survey to find out more about dental care for people with a…
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Rare and BDUC working group to be formed

We’re immensely proud of the fact we have members with a wide range of bleeding…
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First steps towards self-treatment

Learning to self-infuse is a milestone moment for anyone who relies on intravenous treatment to…
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New chapter for cycling hero 

Although Alex Dowsett spent 12 years at the top of professional cycling and is the…
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Haemtrack’s web app launched  

Haemtrack’s new website app goes live today [20 September], replacing its phone app.  The new…
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Ed’s rowing for gold

Rower Ed Fuller has set his sights on a gold medal at the 2024 Paralympics…
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VWD awareness day in Sheffield

More than 50 adults with von Willebrand disorder (VWD) got together for a day of…
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Travelling with haemophilia: Josh’s trip to Thailand

Josh Taylor-Rose, our Youth Ambassador and member of the newly-formed Youth Board, has just spent…
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‘I made the choice to take my life back.’

For Ros Cooper, finding support for her mental wellbeing has been challenging, but it is…
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Jacob, superstar fundraiser!

When seven-year-old Jacob decided to raise £100 for the Haemophilia Society he had no idea…
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