First Gene Therapy Treatment for Haemophilia to be Licensed
Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…Read more
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European Conference Discusses Better Support For Women
The weekend of 21 and 22 May 2022 saw the second ever European conference dedicated to…Read more
Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies
The Haemophilia Society is part of a group of rare disease charities called the Cell…Read more
Thank you for your support of Ukraine!
We’ve been overwhelmed by your generous support of our Ukraine emergency appeal to help people…Read more
Government needs to publish study on Compensation Framework for people affected by contaminated blood products
The Haemophilia Society, MPs and other campaigners have written to the Government demanding they publish…Read more
Advances in inhibitor knowledge and treatment
Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…Read more
Success at Talking Red Live
Talking Red Live in York in early March brought together women with bleeding disorders from…Read more
New Treatment Options for Glanzmann’s on the Horizon
Last month clinicians and researchers from across the world gathered virtually at EAHAD, a congress…Read more
Reporting from EAHAD, which met virtually for its 2022 Congress on Bleeding Disorder Treatment and Care
In February, the European Association for Haemophilia and Allied Disorders had their annual meeting. We…Read more
A Life Inhabited
Thanks to advances in the treatments made available in the last few years, developing inhibitors…Read more
New Health and Care Bill will reorganise the NHS
The Health and Care Bill, which is currently being debated in parliament, has the potential…Read more
NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders
Last year the Government announced plans for a new fund to allow people with rare diseases in…Read more