News

Living with von Willebrand disorder, part 5

Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Remembering Nigel Pegram

We were very sorry to hear of the recent death of Nigel Pegram, a long…
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CRG PPV application process now open

Would you like to take on a role which can really influence what care should…
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Living with von Willebrand disorder, part 4

Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand disorder, part 3

Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand disorder, part 2

Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand Disorder Part 1.5

Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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The Beginning – Living with von Willebrand Disorder Part 1

Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Clive Smith: I went to Conservative Party Conference to raise the issues facing our members

The Conservative Party met in Birmingham last week for their annual party conference. I went…
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Infected Blood Inquiry interim report recommends interim compensation

The Infected Blood Inquiry has this afternoon published an Interim Report from the chair Sir Brian…
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Putting Access to Physiotherapy on the Agenda in Parliament

The Haemophilia Society this week brought together key people from the world of haemophilia care…
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First Gene Therapy Treatment for Haemophilia to be Licensed

Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…
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