The Haemophilia Society responds to NICE Consultations
Starting in 2020, NICE has been running a series of consultations looking at their processes for health…Read more
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Update to Hemlibra (emicizumab) Convenience Kits
Following approval from the European Medicines Agency (EMA) last August, Roche-Chugai will be introducing updated…Read more
Fitusiran update following EAHAD 2021 Congress
During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…Read more
EHC publishes update on the nasal desmopressin spray recall
In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…Read more
New guidelines for diagnosis and management of von Willebrand Disease published
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…Read more
Talented mum raises funds for The Haemophilia Society
My second-born son Bobby was born in May 2019, after a short stay in hospital…Read more
Understanding the preferences of people with haemophilia for gene therapy
You are invited to take part in a study which aims to explore the preferences…Read more
Joint statement from The Haemophilia Society and Healthcare at Home
Constructive discussions held between Healthcare at Home and The Haemophilia Society Senior representatives from The…Read more
APPG on Haemophilia and Contaminated Blood launch final report
The APPG on Haemophilia and Contaminated Blood are a group of MPs who campaign for…Read more
Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease
We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi…Read more
Take part in exciting new research in partnership with Newcastle University
Are you a caregiver for a young person with haemophilia? Would you like to take…Read more
Haemophilia centre will return to its original base at the Royal Victoria Infirmary
We recently wrote to The Newcastle upon Tyne Hospitals NHS Foundation Trust on behalf of…Read more