Why taking part in research really matters
William McKeown, a doctor in Northern Ireland – who also has severe haemophilia A – has recently…Read more
Healthcare Posts
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Infusion kit research – can you help?
We have been approached by a fieldwork research agency, Acumen Fieldwork, who are working with…Read more
Healthcare at Home becomes Sciensus
From 5 July 2021, Healthcare at Home is changing its name to Sciensus. It will…Read more
Lack of awareness of women’s bleeding disorders is delaying diagnosis
Women’s bleeding disorders can have a big impact physically, psychologically and financially, yet many people…Read more
Face-to-face PIP assessments to resume in England
With lockdown restrictions in England easing, face-to-face PIP assessments will slowly be returning – with…Read more
The Haemophilia Society and Healthcare at Home –working together to improve the service to patients with bleeding disorders
We have been working with Healthcare At Home recently to improve the service to patients…Read more
Takeda UK and The Haemophilia Society launch national survey results uncovering new insights into mental health impact for people living with bleeding disorders
The Bleeding Disorders Patient Experience Survey has been initiated and funded by Takeda and developed…Read more
Healthcare at Home – product recall statement
Healthcare at Home have been advised by the Medicines and Healthcare products Regulatory Agency (MHRA)…Read more
The Haemophilia Society responds to NICE Consultations
Starting in 2020, NICE has been running a series of consultations looking at their processes for health…Read more
Update to Hemlibra (emicizumab) Convenience Kits
Following approval from the European Medicines Agency (EMA) last August, Roche-Chugai will be introducing updated…Read more
Fitusiran update following EAHAD 2021 Congress
During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…Read more
EHC publishes update on the nasal desmopressin spray recall
In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…Read more