‘Every centre should have mental health support’
When Amy’s baby son was unexpectedly diagnosed with an extremely rare genetic bleeding disorder, she…Read more
Healthcare Posts
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A Week In The Life: Julia
Julia Collins is our Supporter Engagement Officer, who works as part our services team. She…Read more
Ross’s tips on staying fit and active
Ross Bennett, one of our youth ambassadors, has recently been interviewed by the European Haemophilia…Read more
A Week In The Life: Jeff
As part of a series featuring staff at the Haemophilia Society, Jeff Courtney, our Policy…Read more
Our request to Sir Keir Starmer MP
Today, 1 March, we have written to Sir Keir Starmer MP, to ask that he…Read more
Show your support on Rare Disease Day on 28 February
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…Read more
A Week In The Life: Jessica
As part of a series featuring staff at the Haemophilia Society, Jessica Bomford, our Public…Read more
Christina’s Story
“Nobody in my family knew anything about bleeding disorders, when I was born,” says Christina,…Read more
Gene Therapy for Haemophilia B to be licensed next year
A gene therapy for haemophilia B has moved a step closer to being licensed for…Read more
Living with von Willebrand disorder, part 6
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Living with von Willebrand disorder, part 5
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…Read more
Remembering Nigel Pegram
We were very sorry to hear of the recent death of Nigel Pegram, a long…Read more