In the UK there are over 36,000 people with a rare genetic bleeding disorder such as haemophilia, Factor VII deficiency, Glanzmanns or von Willebrands.
This year’s #RareDiseaseDay theme is ‘Rare is many, Rare is strong, Rare is proud‘
Celebrated every year on the last day of February, Rare Disease Day is an opportunity to be part of a global campaign to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Rare Disease Day is for everyone – individuals and families directly affected by rare diseases, caregivers, medical professionals, policy makers, companies, researchers and members of the general public can all get involved to show their support for the global rare disease community.