Become a Member

Join the Haemophilia Society – Together For Life

We’re a group of people connected through our life experiences; a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome. People living with one, their friends and family, healthcare professionals, doctors and nurses.

We offer support through local groups across the UK, free membership events for people at all stages of life, and a vibrant online community, where people affected by bleeding disorders can find friendship, a listening ear, information, and share their views and experiences. Expert, in-depth resources and news updates keep members informed and help equip them with knowledge and confidence.

Together with its members, the Society has also campaigned on behalf of people affected by bleeding disorders for over 70 years, continuously lobbying Government, the NHS and clinicians for the best possible care, safe and effective treatment, and equitable access for all.

There are over 5,000 members of the Haemophilia Society, including people and families living with bleeding disorders, as well as healthcare professionals. The charity’s supporters help fundraise the costs that are vitally needed to be able to offer membership – and services such as events and printed publications – entirely free to all members.

More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder, and this number rises every year.

What we do:

Support each other
We understand each other. We offer advice and support from personal experience. Our growing community is there for each other because we’re in it together.

Raise awareness
We rally together because every little thing we do makes a difference and gives hope to people living with a bleeding disorder.

Make a lasting difference
We influence and advocate on what matters to our community. Health and social care policy, access to treatment and much more.

Download the membership leaflet or complete the membership form below.

Membership leaflet

Become a Member

    Membership Type

    Are you an existing member updating your details?

    Are you a person with a bleeding disorder or an unaffected carrier?

    Are you also a carer/parent of a child (under 18) with a bleeding disorder?

    Are you the relative (non-parent) or partner of a person with a bleeding disorder?

    Your Parent/Guardian's Details

    To become a Junior Member you must have the consent of your parent or guardian. Please provide us with the details of your parent or guardian who must also be a member.


    Your Personal Details



    Your Contact Details






    Affected Carrier/Bleeding Disorder Details

    Children and Young People (Under 18)

    If you’re a parent/guardian of any children or young people under the age of 18, please provide us with their details below – including any siblings who don’t have a bleeding disorder. Providing us with this information will help us to send you relevant information to your child’s age-group and to let you know about children’s and young people’s activities and events they might like to take part in.

    Communication Preferences

    As a member you consent to receive information regarding our work, through HQ magazine, online and newsletters. As a member, we are required to contact you with statutory information such as AGM papers and member voting information as part of our constitution. If there are any specific areas of interest you would like more information about, we would want to make sure you get it. It is key for us that we can serve you as best as possible, tailoring information to your interests.

    I would like to:
    "Hear more about your campaigning work. For example - updates on benefits, advocacy, access to treatment, quality of care etc." "Hear how people support The Society and about the ways funding is raised to provide the free services to the community." "Receive the latest information about services, and ways The Society supports the community." "Be kept updated about the work being done on the Public Inquiry."]

    The Haemophilia Society would like to keep you up to date with our work including information about our support, services and events, details of fundraising activities, general information about our work and what you are helping us to achieve. We need your permission to keep in touch, we will keep your details safe and you can change your preferences at any time by contacting us. Please read our Privacy Policy for more information about how we look after your details.

    Please tick how you would like the Haemophilia Society to contact you in the future.

    Communication preference: (select at least one option)

    Please note: By signing up to become a member you will receive information about our AGM and Trustee elections, as every member has the right to vote, as well as receiving Community Matters magazine and appeals twice a year by your preferred method of communication.

    You will also be automatically opted-in to receive the communications listed below. If you wish to OPT OUT, please tick next to the communications you do not wish to receive:

    I DO NOT want to receive information on:

    Due to increasing postal charges, we do not post all fundraising, public inquiry, and services communications. All information can be found on our website.
    Email is the most efficient way that we can keep in touch with you. We promise that we will not inundate you with information.

    Please keep us up to date with your contact details if they change, and remember to add our email address to your Safe Senders list so you'll always receive our messages in your inbox.

    Make a Monthly Donation

    We rely on voluntary donations to support our work for everyone with a genetic bleeding disorder. Monthly donations, big or small, are vital in helping us plan for the future so that we can always be there for our community.

    Would you like to donate today?

    Monthly Donation


    Make your gift worth 25% more at no cost to you with Gift Aid! By checking the Gift Aid box below, you confirm that you are a UK Tax Payer and you would like The Haemophilia Society to reclaim the tax on all qualifying donations you have made as well as any future donations until you notify us otherwise.

    I understand that I must have paid income / capital gains tax that is at least equal to the amount of tax that all the charities and Community Amateur Sports Clubs I donate to will reclaim on my Gift Aid donations in the tax year in which they are received and that Council Tax and VAT do not count for this purpose.