Become a Member

Join the Haemophilia Society

The Haemophilia Society is the only UK-wide charity and free membership organisation for everyone affected by a bleeding disorder. It aims to empower people affected by a bleeding disorder to live life to the fullest.

The Society offers support through local groups across the UK, free membership events for people at all stages of life, and a vibrant online community, where people affected by bleeding disorders can find friendship, a listening ear, information, and share their views and experiences. Expert, in-depth resources and news updates keep members informed and help equip them with knowledge and confidence.

Together with its members, the Society has also campaigned on behalf of people affected by bleeding disorders for over 70 years, continuously lobbying Government, the NHS and clinicians for the best possible care, safe and effective treatment, and equitable access for all.

There are over 4,500 members of The Haemophilia Society, including people and families living with bleeding disorders, as well as healthcare professionals. The charity’s supporters help fundraise the costs that are vitally needed to be able to offer membership – and services such as events and printed publications – entirely free to all members.

More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder, and this number rises every year.

We work to enable members to:

  • Find community – We create opportunities for you to meet and keep in touch with other people living with a bleeding disorder via local groups around the UK, global family network, and our online community
  • Feel informed – We provide access to expert resources and information on genetic bleeding disorders
  • Challenge yourself – We offer a range of creative ways for you to raise vital funds and help us to continue to our vital work
  • Feel heard – We influence and advocate on your behalf on health and social care policy and access to treatment  

Download the membership leaflet or complete the membership form below.

Membership leaflet

Become a Member

    Membership Type

    Do you have a bleeding disorder?

    Are you also a carer/parent of a child (under 18) with a bleeding disorder?

    Your Parent/Guardian's Details

    To become a Junior Member you must have the consent of your parent or guardian. Please provide us with the details of your parent or guardian who must also be a member.

    Your Personal Details

    Your Contact Details

    Your Bleeding Disorders

    Children and Young People (Under 16)

    If you’re a parent/guardian of any children or young people under the age of 16, please provide us with their details below – including any siblings who don’t have a bleeding disorder. Providing us with this information will help us to send you relevant information to your child’s age-group and to let you know about children’s and young people’s activities and events they might like to take part in.

    Communication Preferences

    As a member you consent to receive information regarding our work, through HQ magazine, online and newsletters. As a member we are required to contact you with statutory information such as AGM papers and member voting information as part of our constitution. If there are any specific areas of interest you would like more information about, we would want to make sure you get it. It is key for us that we can serve you as best as possible, tailoring information to your interests.

    I would like to:

    The Haemophilia Society would like to keep you up to date with our work including information about our support services and events for families and young people, details of fundraising activities, volunteering, general information about our work and what you are helping us to achieve. We need your explicit permission to keep in touch with you, we will keep your details safe and you can always change your preferences at any time just by contacting us. Please read our Privacy Policy for more information about how we look after your details. Please tick how you would like The Haemophilia Society to contact you in the future.

    I would like to hear from you by:

    Please keep us up to date with your contact details if they change.

    Remember to add our email address to your Safe Senders list so you'll always receive our messages in your inbox.