Underserved – Overlooked: How our health systems are failing women and girls with a bleeding disorder

Funding for this project was provided through grants from the following:

‘Underserved, Overlooked: How our health systems are failing women and girls with a bleeding disorder’ is a report from the Haemophilia Society, exploring the standards of healthcare and associated services for women and girls with a bleeding disorder. 

The report examines existing research alongside new case studies to identify the gaps in knowledge, data and understanding and highlight shortcomings within the existing healthcare system. It also presents a series of recommendations on how this can be addressed. 

Our hope is to begin a conversation on the urgent reforms needed to ensure these women and girls are no longer overlooked.

Fill in the form below to download your copy of the report.

Share your story

Our campaign is built on the real-life lived experiences of women and girls with a bleeding disorder. We’re so grateful to the women and girls who have shared their stories, experiences and challenges.

We want to continue to share them as we push for genuine change.

If you would be interested in sharing your story – whether it’s a single experience or an ongoing struggle, we want to hear from you. Simply complete the form below.

Help us drive this campaign forward

Support our campaign to improve the treatment, care and the quality of life of women and girls with a bleeding disorder. 

With your help we can take our campaign to bleeding disorder centres, to researchers, care commissioners and NHS trusts to support life-changing improvements to care and treatment.  

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