Share your views with NHS England
NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…Read more
News
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APPG Inquiry into Access to Treatment – Call for Evidence
The All-Party Parliamentary Group on Haemophilia and Contaminated Blood has launched an Inquiry into the…Read more
Advocating for Access to New Treatment
This is an exciting time as new treatments and new treatment approaches for bleeding disorders…Read more
Managing Treatment and Access to Products post Brexit
Many of our members have expressed concerns about how access to the treatments they require…Read more
Supporter story – Father is inspired to run the London Marathon after his son is diagnosed with haemophilia A
Hello I am Sam and this is our story about our youngest son Jaxon and…Read more
Supporter story – Caroline Duff and her son Sean take on the London Marathon
I met my husband on the first day of Freshers week at Leeds University in…Read more
Recruiting members to join haemophilia centre review teams
For many years haemophilia centres have been audited every 3 years to assess the quality…Read more
Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families…Read more
Monthly updates launched
So much happens here at The Society, and we want to share all of these…Read more
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with…Read more
DWP Reviewing PIP Applications from People with Bleeding Disorders
In October 2017, the Department for Work and Pensions set up a working group with…Read more
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…Read more