Want to share your experience of living with, or caring for children with haemophilia A?
We are working with Roche Products Limited and Chugai Pharma UK Ltd to help recruit…Read more
News
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Our Youth Ambassador Scott has shared his story of how haemophilia impacted his mental wellbeing
It was very difficult as a child to understand why I was being treated differently…Read more
Roche/Chugai statement regarding particles in vials of Hemlibra®▼ (emicizumab)
During a routine examination of drug product batches, as part of our quality assurance systems…Read more
The Haemophilia Society welcomes NHSE announcement on Hemlibra
The Haemophilia Society welcomes NHS England’s announcement today that they will now fund a new…Read more
Daily Mail article helps to raise awareness of women with bleeding disorders
There is a lot of misunderstanding about bleeding disorders and many people don’t know that…Read more
Letter from the APPG to Amber Rudd
Letter signed by members of the Haemophilia and Contaminated Blood APPG to Amber Rudd, Secretary…Read more
APPG holds evidence sessions in Parliament
Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia…Read more
BBC2 documentary on vCJD
Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef…Read more
Getting information from UKHCDO – an update
The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient…Read more
New resource – Dental Care For Adults With A Bleeding Disorder is launched
We are pleased to announce that our new resource, Dental Care For Adults With A…Read more
Setting priorities for bleeding disorders – final report published
From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…Read more
Response to concerns about Emicuzumab
Recently reports have been shared on social media about deaths relating to a new treatment…Read more