News

Update from Board of Trustees Chair, Clive Smith

15 May 2020 – Here is an update from our Chair, Clive Smith. This week…
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HBDCA launch new website

The Haemophilia & Bleeding Disorder Counselling Association (HBDCA) have recently launched their new website and…
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Update from Board of Trustees Chair, Clive Smith

1 May 2020 – Here is an update from our Chair, Clive Smith. This week…
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Quality Review Service publish peer reviews of the UK’s haemophilia centres

For over a year now, volunteers comprising of patients, parents/carers, HCPs and other advocates from…
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Statement on the resignation of Liz Carroll, CEO

The Haemophilia Society’s CEO Liz Carroll has resigned from her position with immediate effect. We…
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Anxious and worried right now? You’re completely normal!

Most of us are feeling stressed and anxious at the moment, but how do we…
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Update from the European Haemophilia Consortium

Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there…
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MOT due dates extended by six months

MOT due dates for cars, motorcycles and light vans are to be extended by six…
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DWP suspends benefit reviews and reassessments

Reviews and reassessments for disability benefits are being suspended for the next three months as…
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Hemlibra availability with Corona Virus

Following concerns from our community, Roche have issued the following statement about supply and availability…
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NHS England decisions on new treatments for bleeding disorders

The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…
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Scotland step closer to becoming first country in world to make sanitary products free for all women

Last month we welcomed a new scheme that allows schools and colleges in England to…
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