NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders
Last year the Government announced plans for a new fund to allow people with rare diseases in…
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New guidelines for diagnosis and management of von Willebrand Disease published
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…
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Take Part in the Newly Launched National Bleeding Disorders Patient Experience Survey
We are proud to launch the Bleeding Disorders Patient Experience Survey, developed in partnership with…
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Take part in exciting new research in partnership with Newcastle University
Are you a caregiver for a young person with haemophilia? Would you like to take…
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We need you! #TalkingRed – Another Bleeding Survey
There are more than 15,000 women and girls with a diagnosed bleeding disorder in the…
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Setting priorities for bleeding disorders – final report published
From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…
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New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…
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We need your help to find out what matters most
No one understands bleeding disorders better than those who experience it or care for those…
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Research into the lives of Haemophilia Siblings
Calling all brothers and sisters of people with severe haemophilia A! One of our members…
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Receive a gift voucher in return for your participation in a short Haemnet research study
Are you 16 years or older? The parent of a child under 16? Living with…
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