Member story Posts

‘I didn’t know anyone else like me’ – living as a trans woman with severe haemophilia A

Bleeding with pride – For Elizabeth, growing up with severe haemophilia a often meant feeling different from the people around her. Frequent bleeds and restrictions on physical activity left her feeling excluded during childhood, long before she began to understand her gender identity.

Guests from Malta inspired by Youth Camp

This year at Youth Camp we were delighted to be joined by a family from…
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Travelling with haemophilia: Josh’s trip to Thailand

Josh Taylor-Rose, our Youth Ambassador and member of the newly-formed Youth Board, has just spent…
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Tegen teaches school friends about haemophilia

We are so impressed by 7-year-old Tegen, from Wiltshire, who gave a talk to her…
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A Life Inhabited

Thanks to advances in the treatments made available in the last few years, developing inhibitors…
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Talented mum raises funds for The Haemophilia Society

My second-born son Bobby was born in May 2019, after a short stay in hospital…
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In memory of Jane Tibbutt

Jane Tibbutt, who died, aged 80, in May 2020, lived with a bleeding disorder and,…
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Our Youth Ambassador Scott has shared his story of how haemophilia impacted his mental wellbeing

It was very difficult as a child to understand why I was being treated differently…
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