Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease
We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi…
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Haemophilia centre will return to its original base at the Royal Victoria Infirmary
We recently wrote to The Newcastle upon Tyne Hospitals NHS Foundation Trust on behalf of…
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EHC Statement on Desmopressin Nasal Sprays availability
Late last week, we were informed of an international recall of all Ferring Parmaceuticals Limited nasal sprays…
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Home delivery – tell us about it
If you get your medication through home delivery, we would like to hear from you….
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Peer Review report on centres published today
Today sees the publication of the Overview Report of the Inherited and Acquired Haemophilia and…
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HBDCA launch new website
The Haemophilia & Bleeding Disorder Counselling Association (HBDCA) have recently launched their new website and…
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Quality Review Service publish peer reviews of the UK’s haemophilia centres
For over a year now, volunteers comprising of patients, parents/carers, HCPs and other advocates from…
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Anxious and worried right now? You’re completely normal!
Most of us are feeling stressed and anxious at the moment, but how do we…
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Update from the European Haemophilia Consortium
Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there…
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Hemlibra availability with Corona Virus
Following concerns from our community, Roche have issued the following statement about supply and availability…
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NHS England decisions on new treatments for bleeding disorders
The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…
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Scotland step closer to becoming first country in world to make sanitary products free for all women
Last month we welcomed a new scheme that allows schools and colleges in England to…
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