EHC publishes update on the nasal desmopressin spray recall
In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…Read more
Healthcare Posts
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New guidelines for diagnosis and management of von Willebrand Disease published
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…Read more
Understanding the preferences of people with haemophilia for gene therapy
You are invited to take part in a study which aims to explore the preferences…Read more
Joint statement from The Haemophilia Society and Healthcare at Home
Constructive discussions held between Healthcare at Home and The Haemophilia Society Senior representatives from The…Read more
APPG on Haemophilia and Contaminated Blood launch final report
The APPG on Haemophilia and Contaminated Blood are a group of MPs who campaign for…Read more
Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease
We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi…Read more
Haemophilia centre will return to its original base at the Royal Victoria Infirmary
We recently wrote to The Newcastle upon Tyne Hospitals NHS Foundation Trust on behalf of…Read more
EHC Statement on Desmopressin Nasal Sprays availability
Late last week, we were informed of an international recall of all Ferring Parmaceuticals Limited nasal sprays…Read more
Home delivery – tell us about it
If you get your medication through home delivery, we would like to hear from you….Read more
Peer Review report on centres published today
Today sees the publication of the Overview Report of the Inherited and Acquired Haemophilia and…Read more
HBDCA launch new website
The Haemophilia & Bleeding Disorder Counselling Association (HBDCA) have recently launched their new website and…Read more
Quality Review Service publish peer reviews of the UK’s haemophilia centres
For over a year now, volunteers comprising of patients, parents/carers, HCPs and other advocates from…Read more