Remembering Nigel Pegram
We were very sorry to hear of the recent death of Nigel Pegram, a long…
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CRG PPV application process now open
Would you like to take on a role which can really influence what care should…
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Living with von Willebrand disorder, part 4
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand disorder, part 3
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand disorder, part 2
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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Living with von Willebrand Disorder Part 1.5
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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The Beginning – Living with von Willebrand Disorder Part 1
Carly, 32, lives with her husband Nick in Devon. They have a busy house; with…
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First Gene Therapy Treatment for Haemophilia to be Licensed
Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…
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Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies
The Haemophilia Society is part of a group of rare disease charities called the Cell…
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Advances in inhibitor knowledge and treatment
Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…
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New Treatment Options for Glanzmann’s on the Horizon
Last month clinicians and researchers from across the world gathered virtually at EAHAD, a congress…
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Reporting from EAHAD, which met virtually for its 2022 Congress on Bleeding Disorder Treatment and Care
In February, the European Association for Haemophilia and Allied Disorders had their annual meeting. We…
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