First licensed gene therapy for haemophilia B not recommended for use in the NHS
The first attempt to get a gene therapy for haemophilia B commissioned in the UK…
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My physio and I are a team
Regular access to specialist physiotherapy has helped Tom stay active and develop his love of…
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Paul missed out on 20 years of physio services
Although Paul received physiotherapy as a child for his severe haemophilia, he did not access…
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Raise money for us at work
Hannah was so happy with the support her family received from the Haemophilia Society (THS)…
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Empowering the next generation
We’re proud to announce the launch of our first Youth Board which will support, empower…
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Take pride in who you are
Mark Ward has been the Haemophilia Society’s LGBT Ambassador since 2019 and works within our community…
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‘Every centre should have mental health support’
When Amy’s baby son was unexpectedly diagnosed with an extremely rare genetic bleeding disorder, she…
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A Week In The Life: Julia
Julia Collins is our Supporter Engagement Officer, who works as part our services team. She…
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Ross’s tips on staying fit and active
Ross Bennett, one of our youth ambassadors, has recently been interviewed by the European Haemophilia…
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A Week In The Life: Jeff
As part of a series featuring staff at the Haemophilia Society, Jeff Courtney, our Policy…
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Our request to Sir Keir Starmer MP
Today, 1 March, we have written to Sir Keir Starmer MP, to ask that he…
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Show your support on Rare Disease Day on 28 February
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
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