Recognition awards for outstanding care announced
Three outstanding bleeding disorders specialists nominated by our members were honoured at our Big Get-Together…Read more
Healthcare Posts
Read more
The Haemophilia and Bleeding Disorders Alliance
The Haemophilia and Bleeding Disorders Alliance (HBDA) is a new organisation which brings together support…Read more
Mountain climb raises £3,000
Aisling was inspired to climb Mount Kilimanjaro in Tanzania to raise £3,000 for the Haemophilia…Read more
Three UK representatives elected to key EHC committee
We’re delighted to tell you that three people from the UK have been elected to…Read more
Emily’s fundraising efforts reach dizzying heights
Some people do fundraising runs, walks and cycles, others bake cakes. Emily is hurling herself…Read more
Blow for new extended half-life product
We’re extremely disappointed to learn that a new extended half-life product for haemophilia A will…Read more
Dental care – what’s your experience?
We’re launching a survey to find out more about dental care for people with a…Read more
New medical advisory group launched
We have changed the way we review medical and scientific information by widening the range…Read more
Welcome to our new trustees
We’re thrilled to introduce two new trustees who will help to shape and provide strategic…Read more
Volunteers needed to assess centres
Could you help improve treatment and care for people with bleeding disorders? Next year, 31…Read more
Von Willebrand what?… Disease? Disorder? Dismissed?
Sunny Maini and Hannah Yarnall from the Haemophilia Society’s von Willebrand Disorder (VWD) Working Group…Read more
First licensed gene therapy for haemophilia B not recommended for use in the NHS
The first attempt to get a gene therapy for haemophilia B commissioned in the UK…Read more