Von Willebrand what?… Disease? Disorder? Dismissed?
Written by Nicola Sugg, August 14, 2023
Sunny Maini and Hannah Yarnall from the Haemophilia Society’s von Willebrand Disorder (VWD) Working Group discuss their experiences living with VWD, their journey into advocacy, and establishing the group through the Haemophilia Society with Luke Pembroke and Kate Khair of Haemnet.
For more information on the VWD working group, contact Sunny via email: [email protected]