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Getting information from UKHCDO – an update

The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient information recorded on the National Haemophilia Database (NHD).

It also provides a history of the NHD and its development, provides clarity on the information held and any limitations where appropriate.

The explanatory document is now included with all NHD patient reports that are issued to help the requester understand the information within the report. 

It may be of interest to those who have historically obtained a NHD report, and to those who wish to increase their knowledge of the NHD generally.

You can find out more via the links below.

www.ukhcdo.org/patient-information/

www.ukhcdo.org/wp-content/uploads/2019/05/National-Haemophilia-Database-Extract-Explanation-incl-paper-records_FINAL.pdf

Jess Milton

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