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WHO WE ARE

ABOUT US

WHO WE ARE

WE ARE THE HAEMOPHILIA SOCIETY

We are the only UK-wide charity for everyone affected by a bleeding disorder: a community of members, supporters and healthcare professionals. Our work is driven by a small staff team, based in London and working alongside volunteers from all over the UK. We are governed by a board of trustees.

As a health charity, we work to provide easy access to information and opportunities, influence national policy and practice to make the care and treatment of bleeding disorders consistent, effective and accessible to all and enable the voices of all people with bleeding disorders to be heard.

Our strategy sets out our goals, aspirations and plans for 2015-18. It aims to make sure that everything we do improves the lives of people affected by a bleeding disorder in the UK today so we can continue to provide help and support for many years to come.

The strategy and plan was launched at our annual general meeting (AGM) in October 2013, and reflects the needs and concerns of members and local groups. We worked with our members who attended our AGM and conference in November 2014 to refine and prioritise our activity and services in the coming years.

HISTORY

VISION

Everyone with a genetic bleeding disorder has equality of opportunity and are supported, enabled and empowered to live the best life that they can. 

MISSION

For everyone affected by a genetic bleeding disorder to have equality of opportunity and feel empowered to influence their own wellbeing and health care decisions. By bringing people together for information and support we will amplify their voices to reduce isolation and influence government, welfare and health care policy.  

VALUES

We try to relate everything we do to the needs of everyone affected by bleeding disorders, to act with integrity, honesty and transparency, to make the best use of our resources, and to be inclusive and independent. 

OUR PEOPLE

CEO Liz Carroll works with a talented team of professionals to accomplish The Haemophilia Society’s goals and mission. Our small staff team work hard from our office base in London, shaping the Society’s future and providing services and support to members around the UK. 

Emma Bradley

Community and Events Fundraiser

Anna Turner

Head Of Finance

Nicola Sugg

Programmes and Events Manager

Debra Morgan

Public Inquiry Lead

Jess Milton

Communications Officer

Elisha Richardson

Receptionist & Office Administrator

Rose Ozdemir

Services Co-ordinator

Fiona Donoghue

Office Manager & PA to CEO

Jefferson Courtney

Head of Policy and Programmes

James Hunt

HEAD OF FUNDRAISING & ENGAGEMENT