About The Haemophilia Society

The Haemophilia Society is the only UK-wide charity for everyone affected by a bleeding disorder.

More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder, and the number rises every year.  

Formed in 1950, The Society campaigns for better treatment, provides information and advice, and supports people living with long-term conditions.  It was The Society’s pressure on government that led to the opening of the first dedicated haemophilia centre in Oxford, in 1954.  Today are more than 60 centres across the UK.

As well as campaigning, we deliver a wide range of activities and services which help people affected by bleeding disorders lead fulfilling lives, make informed choices about their treatment and inspire others to do the same.  

Our peer support through local groups around the UK, the global family network, and online community, offers friendship as well as the opportunity for people to share their experiences.  We make sure our members’ voices are heard by government and reflected in welfare and health care policy.

The Society is proud to offer a range of activities and services to support our community, from special information weekends for families whose children have been newly diagnosed with haemophilia to The Talking Red project which raises awareness of women’s bleeding disorders.

The Society provides support to the All Party Parliamentary Group on Haemophilia and Contaminated Blood as well as undertaking and supporting a variety of research projects. 

The Society is also part of the World Federation of Hemophilia