News

MPs call for an Inquiry into the Contaminated Blood Scandal

A debate was held this afternoon in Parliament on Contaminated Blood led by Andy Burnham….
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Enter your sporting photo into Alex Dowsett’s Little Warriors competition

Are you a Little Warrior? Why not take part in Little Bleeders very first photography…
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A day in the life of a vWD woman: Ria’s story

A day in the life of a vWD woman: Ria’s story The theme of this…
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APPG on Haemophilia and Contaminated Blood – Latest Meeting

The APPG on Haemophilia and Contaminated Blood met on the 29th March. The Agenda for…
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Cancelled: APPG meeting March 22 2017

Following reports of an incident in the Westminster area, we’re sorry to say that this…
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Bears4Rare: experts call on government to provide fair and fast access to treatments for rare disease patients

Rare conditions affect approximately 1 in 17 people in the UK.1 Although they are living…
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Response to the Contaminated Blood Announcement and Consultation

Overview The Department of Health (DH) today published a written ministerial statement announcing some changes…
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UK launches FibCLOT®▼ LFB’s human fibrinogen concentrate

LFB Biopharmaceuticals announced today the UK launch of FibCLOT, its human fibrinogen concentrate. This follows…
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Submissions to the Health, Disability and Work Green Paper

The Haemophilia Society produced a submission to the Health, Disability and Work Green Paper consultation…
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Work, Heath and Disability Consultation – Member Input

The Government’s Work, Heath and Disability Consultation closes at the end of this week. The…
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APPG on Haemophilia and Contaminated Blood 8th February

The APPG on Haemophilia and Contaminated Blood met last week on the 8th February to…
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Direct-acting Antiviral (DAA) treatment for Hepatitis C risks Hepatitis B reactivation

New guidance from the Medicines and Healthcare products Regulatory Agency (MHRA) advises that all hepatitis…
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