We are the only UK-wide charity for all those affected by a genetic bleeding disorder; a community of individuals and families, healthcare professionals and supporters.
For 70 years we have campaigned for better treatment, been a source of information and support, and raised the awareness of bleeding disorders. Our work is driven by a small staff team, based in London, working alongside volunteers from all over the UK. We are governed by a board of trustees.
More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder, and the number rises every year. Membership of The Haemophilia Society is free and open to all. To become a member, you must be a resident of the UK.
We work to enable members to:
- FIND COMMUNITY – We create opportunities for you to meet and keep in touch with other people living with a bleeding disorder via local groups around the UK, global family network, and our online community
- FEEL INFORMED – We provide access to expert resources and information on genetic bleeding disorders
- CHALLENGE YOURSELF – We offer a range of creative ways for you to raise vital funds and help us to continue to our vital work
- FEEL HEARD – We influence and advocate on your behalf on health and social care policy and access to treatment