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We are the only UK-wide charity for all those affected by a genetic bleeding disorder; a community of individuals and families, healthcare professionals and supporters.

For 70 years we have campaigned for better treatment, been a source of information and support, and raised the awareness of bleeding disorders. Our work is driven by a small staff team, based in London, working alongside volunteers from all over the UK. We are governed by a board of trustees.

More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder, and the number rises every year. Membership of The Haemophilia Society is free and open to all. To become a member, you must be a resident of the UK.

We work to enable members to:

  • FIND COMMUNITY – We create opportunities for you to meet and keep in touch with other people living with a bleeding disorder via local groups around the UK, global family network, and our online community
  • FEEL INFORMED – We provide access to expert resources and information on genetic bleeding disorders
  • CHALLENGE YOURSELF – We offer a range of creative ways for you to raise vital funds and help us to continue to our vital work
  • FEEL HEARD – We influence and advocate on your behalf on health and social care policy and access to treatment