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The Haemophilia Society is the only UK-wide charity for all those affected by a genetic bleeding disorder.

We help people with genetic bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others. Our work is driven by a small staff team, based in London and working alongside volunteers from all over the UK. We are governed by a board of trustees.

As a health charity, we work alongside the NHS to provide easy access to information and opportunities, influence national policy and practice to make the care and treatment of bleeding disorders consistent, effective and accessible to all so that we enable the voices of all people with bleeding disorders to be heard. To become a member, you must be a resident of the UK.


We work to enable members to:

  • FIND COMMUNITY – Meet and keep in touch with other people living with bleeding disorders through news and events
  • GET SUPPORT – Stay informed through access to information and support on inherited bleeding disorders
  • FUNDRAISE TOGETHER – Provide opportunities for you and your friends and family to get involved to raise much-needed support
  • FEEL HEARD – We campaign and advocate on your behalf on issues within the bleeding disorders community.