Transformational gene therapy approved for haemophilia B
Gene therapy for haemophilia B will be available on the NHS following a landmark decision…Read more
Treatment Posts
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Dental care – what’s your experience?
We’re launching a survey to find out more about dental care for people with a…Read more
New Health and Care Bill will reorganise the NHS
The Health and Care Bill, which is currently being debated in parliament, has the potential…Read more
Healthcare at Home becomes Sciensus
From 5 July 2021, Healthcare at Home is changing its name to Sciensus. It will…Read more
Healthcare at Home – product recall statement
Healthcare at Home have been advised by the Medicines and Healthcare products Regulatory Agency (MHRA)…Read more
The Haemophilia Society responds to NICE Consultations
Starting in 2020, NICE has been running a series of consultations looking at their processes for health…Read more
Update to Hemlibra (emicizumab) Convenience Kits
Following approval from the European Medicines Agency (EMA) last August, Roche-Chugai will be introducing updated…Read more
Fitusiran update following EAHAD 2021 Congress
During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…Read more
New guidelines for diagnosis and management of von Willebrand Disease published
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder and there is a…Read more
EHC Statement on Desmopressin Nasal Sprays availability
Late last week, we were informed of an international recall of all Ferring Parmaceuticals Limited nasal sprays…Read more
Home delivery – tell us about it
If you get your medication through home delivery, we would like to hear from you….Read more
New Framework for products for Haemophilia A
A new framework for buying medicines to manage Haemophilia A came into force across the…Read more